This term is used to describe adults who undergo clinical sequencing and are competent to make their own health care decisions. The term, as used here, also refers to parents of minor children or guardians of decisionally-impaired adults who may undergo this testing. In cases where young children or decisionally-impaired adults undergo sequencing, pre- and post-test counseling and consent of parents or guardians on behalf of the minor or decisionally impaired adult should occur, but teenagers and mildly decisionally-impaired adults should not be excluded from these discussions and assent should be sought in appropriate cases.
