Thirteen participants were deemed ineligible: five turned out to have limited English proficiency; four died during the course of the study and could not be debriefed, three were lost to follow up (one participant consented on behalf of a child and as a matched case control for a total of four distinct data release decisions lost to follow up), and one did not provide a data release option. The remaining 323 individual participants were enrolled into the consent study, and 335 distinct data sharing decisions were analyzed.
