Other examples focused on adaptation to uncertainty. One paper [A-7, Biesecker] described the development and use of an adaptation scale assessing how individuals affected by and at risk of being affected by a genetic condition understand and come to terms with health threats. Several panel sessions reported on survey and interview studies of patients’ and families’ interpretation and use of genomic screening and testing results. One panel [B-1] presented empirical evidence to inform practice and policy in personal genomics based on responses to risk information. Such information includes, in the case of the REVEAL Study, return of results from APOE testing, which signals risk for the development of Alzheimer’s disease.
