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Chunk #22 — RESULTS — Community and societal benefits

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Attitudes of African Americans toward return of results from exome and whole genome sequencing.
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AA participants also wanted to make sure their children and future generations would have access to their (the parents’) results. As one mother explained, “I may not want this information but the generations that come after me, Insha’Allah, God willing, could come back and access it” (AA mother, P09-03). There was also a hope that WGS could contribute to resolving broader societal issues such as the use of common notions of race. As this participant questions, “What does it mean for, you know, hair texture and complexion. . . can it alleviate some of the political ways we look at each other and the impacts of those political ways?” (AA mother, P04-06)