Chunk #11 — METHODS AND RESULTS — Common Elements of the CPBR approach — 3) Community participation in data collection and analysis — Example of application to a PBRN
As the next step in the TM/CAM study and using a qualitative research design, RIOS Net researchers pilot tested interviews of patients regarding their communications with clinicians about TM/CAM. The interview guide produced no useful data. The researchers then consulted with focus groups of local community members on the clinic staff at each site where interviews were to take place to determine the culturally and community appropriate way to phrase the guide. The result was a much more culturally-appropriate and linguistically-accurate patient interview guide and productive data collection process. With the completion of data collection, preliminary analytic findings were presented to the CAB for interpretation, verification, and modification, or rejection, as appropriate. CAB members provided important context for interpreting the findings. We then presented the findings to individual patients at several clinic sites in the form of a video vignette aimed at soliciting feedback before finalizing the analysis.
