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Chunk #12 — (1) Blurring the Boundary between Research and Treatment — (a) Returning Incidental Findings

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What research ethics should learn from genomics and society research: lessons from the ELSI Congress of 2011.
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Unless clinicians and researchers work hard to clarify the difference, returning individual results may be viewed by potential subjects as essentially the same as handling incidental findings, at least in part because the key question — What information obtained in research has meaning for individual subjects? — is the same. The difference, of course, lies not in the question but in the answer, since the purpose of genomic research is precisely to gather information whose meaning and value is yet to be determined.