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Chunk #18 — Ethical framework

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The iPSYCH2012 case-cohort sample: new directions for unravelling genetic and environmental architectures of severe mental disorders.
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The Danish Scientific Ethics Committee, the Danish Health Data Authority, the Danish data protection agency and the Danish Neonatal Screening Biobank Steering Committee approved this study. This is in keeping with the strict ethical framework and the Danish legislation protecting the use of these samples.30, 48 Permission has been granted to study genetic and environmental factors for the development and prognosis of mental disorders. To unravel the foundation of severe mental disorders, it is central that this rich data source is accessible to the international research community to the largest extent possible. It is also paramount to protect the privacy of the individuals included in the study. Owing to the sensitive nature of these data, individual level data can be accessed only through secure servers where download of individual level information is prohibited.49 iPSYCH encourage national and international collaboration. For details, please contact Professor Preben Bo Mortensen, Scientific Director of iPSYCH.