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Chunk #10 — 3. Methods — 3.3. Measures

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Enhancing the participation of african americans in health-related genetic research: findings of a collaborative academic and community-based research study.
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An investigator-designed questionnaire was developed to collect the study data. Included in the questionnaire were quantitative measures relevant to involvement of providers in health care decisions and decisions made by regarding participation in health related genetic research. Quantitative measures developed, validated and used in national cohort studies to assess genetics knowledge, beliefs regarding the merits and risks of genetic testing, and perceptions regarding the utility of genetic testing [37–42] were also included.