Engagement with the broad community allows a forum to discuss brain donation and present the opportunity to contribute to health outcomes of future generations (Harmon & McMahon, 2014). Those participating in the UoB program are sent an annual survey to update their longitudinal medical and lifestyle histories. This data collection by the NSWBTRC has evolved to assist with the research analysis. Information attained from the medical record reviews, donor, and next of kin surveys and post-mortem reports gives an insight to social, health, and lifestyle variables of the research cohorts. Retrospective data collection relies on obtaining access to multiple institutional medical records, follow-up interviews with next of kin, and reliability of lifetime alcohol consumption patient reports (Haeny, Littlefield, & Sher, 2014; Jacob, Seilhamer, Bargeil, & Howell, 2006). Dedicated staff at NSWBTRC build a rapport with donors, medical staff, and family members to gain constructive insight into the donor. This insight has been beneficial during the current investigation of methods for quantifying adverse agonal events in order to better inform our collection procedures. Future collaborations with clinical researchers undertaking programs with
