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Chunk #50 — RESULTS — Demographic Characteristics of Participants — Incentives to participating

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An exploration of attitudes among black Americans towards psychiatric genetic research.
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Closely following were monetary compensation and follow-up with participants. Monetary compensation was mentioned in all the groups, with no dissent from group members. Many participants spoke of the desirability of following up with them as a way of making their participation more meaningful. For example, these responses expressed the sentiment that most participants preferred some form of follow-up contact, active engagement during the study, or information regarding outcome of the research study in which they participated. “I think that an awful lot of these research focus groups and studies and stuff, they don’t keep track of you and they don’t tell you what happened later. I think if people found out more information, if there was a follow-up … They know they’re participating in this but—you know, then you got an email six months later or a year later, they’re having another group and they came up with this theory, this research—something which makes your participation have more significance in some sort of a context.”“Well, for example, let’s say you draw some blood from someone. Okay, this week—next week you