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Chunk #8 — 3. Methods — 3.2. Sample, Setting, and Data Collection

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Enhancing the participation of african americans in health-related genetic research: findings of a collaborative academic and community-based research study.
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A nonprobability sample of African American men and women who resided in a large, densely populated, economically, socially, and culturally diverse urban community in the Midwest was recruited to the study. Prospective participants who were 18 years of age or older; able to communicate in English; willing to complete a questionnaire about gene testing and genetic research; and able and willing to consent to participate in the study were invited to participate in the study by members of the research team. The investigative team worked in collaboration with the Black Health Coalition of Wisconsin (BHCW) to recruit study participants. Four community leaders, identified by the coalition director, were hired to and served as facilitators and recruiters for the study. After completing an online module on the protection of human subjects, each study facilitator was provided an overview of the study protocol and an overview of the procedures and methods used for data collection. Flyers and announcements explaining the project and providing contact information were posted by the study facilitators at community centers, heath centers, social service centers, and other public venues frequented by diverse groups of African American men and women.