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Chunk #11 — MATERIALS AND METHODS

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Attitudes of African Americans toward return of results from exome and whole genome sequencing.
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(2) that knowledge about variants will change over time such that in the future additional results could be available; (3) that the interpretation of results could change over time (e.g., the clinical utility of a variant or lack thereof could become evident); and (4) some results might be surprising or unanticipated. Participants were also asked to consider what types of genetic results they would or would not want to receive, and why, and how they might want to receive those results. The guide was pretested with a group of faculty/staff parents, a pilot focus group was conducted, and minor modifications to the guide were made. Each focus group session was audio-recorded and transcribed. Participants received a $40 grocery gift card and refreshments.