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Chunk #51 — (3) Negotiating Genomics in the Public Square16 — (c) Negotiating Procurement Methods in Translational Genomic Research

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What research ethics should learn from genomics and society research: lessons from the ELSI Congress of 2011.
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As a result, ELSI researchers are devoting significant effort to empirical studies of attitudes and experiences of different populations about being involved in large scale or translational research, including African Americans [A-8, McDonald], Native Americans and other indigenous peoples [G-4; D-8, Ossorio], Latino families [B-3], technological elites [D-4, Thiel; D-5, Cappella], and persons with low socioeconomic status, from both the urban north [E-1] and the rural south [D-4, Mitchell]. Research on biobanking presented at the ELSI Congress addressed community and public perceptions of biobanking and related research, revealing the complexities of relationships between biospecimen providers and researchers and the challenges these raise [B-4; D-4; E-2].