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Chunk #5 — Materials and Methods — Study Participants and Procedures

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To share or not to share: a randomized trial of consent for data sharing in genome research.
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Eligible participants were invited to participate in a structured follow-up interview to assess understanding, comfort in decision making, and to examine preferences and attitudes regarding data sharing. To prevent bias, those who agreed to the interview were not shown the other consent forms or data sharing options until partway through the interview. Analysis of interview responses will be reported elsewhere. All materials and methods for this study were reviewed and approved by the BCM IRB.