The two most prevalent response themes in this area involved unpleasant study procedures—drawing blood, and unintended adverse effects resulting from participating in genetic research. For example, some people described extreme situations: “There’s a possibility that you can be lobotomized. You just lose it all. These are experimental so they don’t know the effects that they’re going to have. So I would be concerned that something could go wrong and you’d be a vegetable.”“I watch a lot of TV, but still lots of shows reflect that’s really happening. And they had a number of college students on one show participate in a study and the medication—they found out from what they were taking, in the end a couple of them committed suicide. Anyway, the law eventually was able to make a case on the doctor who headed up the research study that he allowed that medication to be used for his research of whatever kind he was doing. These were supposedly normal people, but they went in—the medication made them depressed and a couple of them committed suicide.”
