Individuals were screened for parental status, age, residence, education, and to determine if their child had a rare genetic condition and therefore had greater than average knowledge of genetics. The overall participant response rate was 40%. The rate for direct telephone solicitation versus flyer-based recruitment was 20% and 59%, respectively. Participants were scheduled to attend focus group sessions at convenient community locations. Materials about the study and informed consent document were mailed to participants. Informed consent was conducted at the beginning of each focus group.
