Twenty percent (n = 43) of the study participants reported that they had been previously involved in a health-related research study. Among those who indicated that they had not been previously involved in a health-related research study, 50.3% (n = 169) reported a willingness to participate. Fifty one percent (n = 85) reported that they would be willing to complete detailed questionnaires about their family health history, social history, occupational history, psychological, and/or emotional health. Fifty three percent (n = 70) reported that they would be willing to allow researchers to collect environmental samples from their home. Fifty two percent (n = 82) reported that they would be willing to provide researchers biological specimens (e.g., tissue, blood, saliva, hair, nail clippings) for genetic analysis. Fifty four percent (n = 70) reported that they would be willing to participate even if the study were longitudinal and required the collection of data over several years. However 88.7% (n = 149) reported that they “had never been asked.”
