Chunk #9 — METHODS AND RESULTS — Common Elements of the CPBR approach — 2) Community participation in developing/refining research protocol — Example of application to a PBRN
In response to the TM/CAM priority topic, RIOS Net researchers proposed a project to explore and identify ways to improve the communications between clinicians and their patients about the use of TM/CAM. Leaders of the network vetted the initial concept with community members and clinicians in the CAB and BOD and with community groups throughout the state, leading to refinement of the research question. Community meetings helped to clarify culturally acceptable limits to the research (e.g., not to explore the specifics or study the effectiveness of Native American healing practices). Iterative discussions with these groups led to the development of a community and culturally acceptable research question and protocol. NIH funding was then obtained to apply this research protocol.
