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Chunk #20 — (1) Blurring the Boundary between Research and Treatment — (c) Biobanking and Blurring

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What research ethics should learn from genomics and society research: lessons from the ELSI Congress of 2011.
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In contrast, making aggregate results of genomic research available poses few blurring problems, and may help to educate the public at large by virtue of educating increasing numbers of biospecimen-providing research subjects. Thus, if biospecimen resources undertake conscientious development of websitebased documents and plain language summaries, return of aggregate results may contribute to public education about the limits of genomic knowledge [A-4]. Similarly, direct-to-consumer genetic testing, which is focused not on research but on return of individual test results, may itself be used as an additional type of educational tool, as outlined by another Congress panel [D-2].