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Chunk #8 — Materials and Methods — Study Instruments

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To share or not to share: a randomized trial of consent for data sharing in genome research.
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Those who signed the traditional consent agreed by default to release their genetic and clinical information into both publicly accessible and restricted scientific databases. The binary consent allowed participants to choose between full public data release and no release. Tiered consent presented all three options; participants could choose public data release, restricted release only, or no release.