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Chunk #9 — Materials and Methods — Consenting donors and addressing ethical, legal and social issues

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A Novel Approach to High-Quality Postmortem Tissue Procurement: The GTEx Project.
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The template agreement is posted publicly at http://biospecimens.cancer.gov/global/pdfs/caHUB_Material_Transfer_and_Data_Use_Agreement_072512-508.pdf. While the development and negotiation of such an agreement required an initial time investment, the agreement clearly laid out responsibilities and requirements for privacy protection for all parties and was written broadly enough to cover the collection process throughout the course of the project.