If We Would Only Ask: How Henrietta Lacks Continues to Teach Us About Perceptions of Research and Genetic Research Among African Americans Today.
- Authors
- Jones, Bridgette L; Vyhlidal, Carrie A; Bradley-Ewing, Andrea; Sherman, Ashley; Goggin, Kathy
- Year
- 2017
- Journal
- Journal of racial and ethnic health disparities
- PMID
- 27664025
- DOI
- 10.1007/s40615-016-0277-1
BACKGROUND: African Americans are under-represented in research, and there are perceptions of unwillingness among African Americans to participate in research. We explored barriers to African American research participation. METHODS: We conducted a cross-sectional survey to explore knowledge and beliefs regarding medical and genetic research among adults (n = 169) at urban community events. Descriptive data were summarized by frequencies for survey responses. RESULTS: Only 13 % of respondents had ever been approached for research; 93 % of those who had been approached for research had participated. Eighty-six percent of those who had previous research experience indicated willingness to participate again vs. only 30 % among those with no research experience. Seventy-four percent had altruistic views of research; 28 % were concerned about truthfulness of researchers; 52 % feared incidental discoveries. CONCLUSION: African Americans have favorable views of research; however, few are being engaged in studies. Effective interventions to address identified barriers may improve participation and lead to better health outcomes among African Americans.
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