Recruitment and retention strategies for minority or poor clinical research participants: lessons from the Healthy Aging in Neighborhoods of Diversity across the Life Span study.
paper
Cited
Public
- Authors
- Ejiogu, Ngozi; Norbeck, Jennifer H; Mason, Marc A; Cromwell, Bridget C; Zonderman, Alan B; Evans, Michele K
- Year
- 2011
- Journal
- The Gerontologist
- PMID
- 21565817
- DOI
- 10.1093/geront/gnr027
- PMCID
- PMC3092978
PURPOSE OF THE STUDY: Investigating health disparities requires studies designed to recruit and retain racially and socioeconomically diverse cohorts. It is critical to address the barriers that disproportionately affect participation in clinical research by minorities and the socioeconomically disadvantaged. This study sought to identify and rectify these barriers to recruit and retain a biracial (African American and non-Hispanic White) and socioeconomically diverse cohort for a longitudinal study. DESIGN AND METHOD: The Healthy Aging in Neighborhoods of Diversity across the Life Span study is a 20-year longitudinal examination of how race and socioeconomic status influence the development of age-related health disparities. One goal was to create a multifactorial recruitment and retention strategy. The recruitment paradigm targeted known barriers and identified those unique to the study's urban environment. The retention paradigm mirrored the recruitment plan but was based on specifically developed approaches. RESULTS: This cohort recruitment required attention to developing community partnerships, designing the research study to meet the study hypotheses and to provide benefit to participants, providing a safe community-based site for the research and creating didactics to develop staff cultural proficiency. These efforts facilitated study implementation and enhanced recruitment resulting in accrual of a biracial and socioeconomically diverse cohort of 3,722 participants. IMPLICATIONS: Recruiting and retaining minority or poor research participants is challenging but possible. The essential facets include clear communication of the research hypothesis, focus on providing a direct benefit for participants, and selection of a hypothesis that is directly relevant to the community studied.
Domain 1βIndividual barriers.
Domain 2βCommunity barriers.
Domain 3βResearcher and scientific barriers.
β Prev
41β48 of 48
| Name | Type |
|---|---|
| active coping local | phenotype |
| Active participants local | cohort |
| activities of daily living local | phenotype |
| African American | cohort |
| age-associated health disparities local | phenotype |
| alcohol | phenotype |
| Baltimore-based cohort local | cohort |
| Baltimore City local | cohort |
| Baltimore City Council members local | cohort |
| Baltimore Police Department local | cohort |
| biracial cohort local | cohort |
| blood | drug |
| body composition | phenotype |
| bone mineral density | phenotype |
| Chronic health conditions | phenotype |
| cognition | phenotype |
| coping | phenotype |
| Coronary Artery Risk Development in Young Adults | cohort |
| Criminal justice system local | cohort |
| demographics | phenotype |
| dental health local | phenotype |
| discrimination | phenotype |
| disease burden | phenotype |
| drug dependence | phenotype |
| Eligible participants local | cohort |
| ethnic identity local | phenotype |
| Forest Park local | cohort |
| Government officials local | cohort |
| government sponsored compensated care local | drug |
| grip strength local | phenotype |
| Halfway houses local | cohort |
| HANDLS local | cohort |
| HANDLS study local | cohort |
| Health disparities | phenotype |
| health insurance | phenotype |
| Health Status Decline local | phenotype |
| high-SES cohort local | cohort |
| Home detention monitoring system local | cohort |
| household composition | phenotype |
| illicit drug use | phenotype |
| income | phenotype |
| interim health status changes local | phenotype |
| intima-media thickness | phenotype |
| inventory local | drug |
| Jackson Heart Study | cohort |
| kidney function | phenotype |
| likelihood of continuing participation local | phenotype |
| Limited transportation local | phenotype |
| lower extremity function local | phenotype |
| low-SES African American males local | cohort |
| low-SES African Americans local | cohort |
| low-SES cohort local | cohort |
| low-SES cohorts local | cohort |
| Maryland's Senators local | cohort |
| minority aging local | phenotype |
| minority populations local | cohort |
| Missed MRV appointments local | phenotype |
| Mistrust of the government and medical research local | phenotype |
| MRV local | drug |
| MRV 1 local | cohort |
| MRV 2 local | cohort |
| MRV 3 local | cohort |
| MRVs local | drug |
| National Health and Nutrition Examination Survey local | cohort |
| neighborhood characteristics local | phenotype |
| neurodegenerative disease | phenotype |
| nutrition | phenotype |
| participants | cohort |
| physical functioning | phenotype |
| Physical Limitation local | phenotype |
| psychiatric screening local | phenotype |
| psychosocial inventories local | phenotype |
| pulse wave velocity | phenotype |
| religiosity | phenotype |
| Reservoir Hill local | cohort |
| Retention | phenotype |
| Revised NEO Personality Inventory local | phenotype |
| severe impairment local | phenotype |
| social support | phenotype |
| South Baltimore local | cohort |
| State Senators local | cohort |
| study acceptability local | phenotype |
| study cohort | cohort |
| subjective well-being | phenotype |
| telephone assessment tool local | drug |
| transient and vulnerable population local | cohort |
| urban adults local | cohort |
| urban residents local | cohort |
| urine | drug |
| usual source of care local | phenotype |
| utilization of care local | phenotype |
| Wave 1 Community Advisory Boards local | cohort |
| wave 2 | cohort |
| Wave 2 Interim Follow-up Study local | cohort |
| whites | cohort |
| working poor local | cohort |
| young adults | cohort |
No uploaded files.
Not in any collection.
In this knowledge base
| Title | Year | PMID |
|---|---|---|
| Post-GWAS in Psychiatric Genetics: A Developmental Perspective on the "Other" Next Steps. | 2018 | 29227573 |
External
| Title | Authors | Journal | Year | Link |
|---|---|---|---|---|
| Gender-related facilitators and barriers to participation in research on aging using fuzzy cognitive mapping. | Dhir V et al. | β | 2026 | β |
| Participant Retention in a Prospective Multicenter Cohort of Participants With Pancreatitis and Factors Associated With Attrition. | Choate R et al. | β | 2026 | β |
| Strategies for Equitable Recruitment to Engage Underrepresented Youth and Their Families into Clinical Research: Findings from the BEAD-T1D Pilot Study. | Medina PeΓ±aranda R et al. | β | 2026 | β |
| A model to predict participant retention in longitudinal acute pancreatitis studies. | Lahooti I et al. | β | 2025 | β |
| Bridging the Gap: A Qualitative Study Exploring the Impact of the Involvement of Researchers With Lived Experience on a Multisite Randomised Control Trial in the National Probation Service in England and Wales. | Simes E et al. | β | 2025 | β |
| Building a Digital Health Research Platform to Enable Recruitment, Enrollment, Data Collection, and Follow-Up for a Highly Diverse Longitudinal US Cohort of 1 Million People in the All of Us Research Program: Design and Implementation Study. | Klein D et al. | β | 2025 | β |
| Callback time preference for prescreening visits among Black residents in the Boston area: findings from two randomized controlled trials. | Zeto R et al. | β | 2025 | β |
| Diversity, equity, and inclusion in asthma clinical trials: A cross-sectional analysis. | Hazlitt R et al. | β | 2025 | β |
| Engaging Historically Excluded Women in Health Research: Addressing Intersectional Barriers to Advance Equitable Recruitment. | Abrams J et al. | β | 2025 | β |
| Factors influencing health-seeking behaviours and self-care practices among black-African Caribbean people living with type 2 diabetes: a community-focused qualitative study from Southwestern England. | Sapkota R et al. | β | 2025 | β |
| Knowledge and awareness of healthcare systems and the uptake of diabetic services among Chinese people diagnosed with type 2 diabetes in the UK. | Sehmbi T et al. | β | 2025 | β |
| Recruitment of mid-life adults to a randomized clinical trial: The multicultural healthy diet study to reduce cognitive decline and Alzheimer's disease risk. | Katz MJ et al. | β | 2025 | β |
| Recruitment Strategies to Optimize Participation by Diverse Populations (Reprinted with Permission). | Webber-Ritchey KJ et al. | β | 2025 | β |
| Strategies to optimize the engagement of culturally and linguistically diverse populations in cardiac research: a systematic review. | Abou Chakra M et al. | β | 2025 | β |
| The perks of being bilingual: Autobiographical memory and aging among bilingual and monolingual Hispanic adults. | Acevedo-Molina MC et al. | β | 2025 | β |
| Toward labor-sensitive research: Health data labor and targeted inclusion in precision medicine research. | Kenis D et al. | β | 2025 | β |
| Understanding barriers and facilitators to participation in Parkinson's research in Black communities in the UK. | Dobreva I et al. | β | 2025 | β |
| Access to Chronic Pain Services for Adults from Minority Ethnic Groups in the United Kingdom (UK): a Scoping Review. | Leach E et al. | β | 2024 | β |
| A Mini-Review of Strategies for Recruiting Older African Americans to Alzheimer's Disease Research. | Esiaka D et al. | β | 2024 | β |
| Broadening the Environmental Lens to Include Social and Structural Determinants of Women's Health Disparities. | Smarr MM et al. | β | 2024 | β |
| Caregiver Wellness after Traumatic Brain Injury (CG-Well): Protocol for a randomized clinical trial. | Kreitzer N et al. | β | 2024 | β |
| Community engagement strategies for population health research with culturally diverse adults. | Webb FJ et al. | β | 2024 | β |
| Health and social care experience and research perception of different ethnic minority populations in the East Midlands, United Kingdom (REPRESENT study). | Ekezie W et al. | β | 2024 | β |
| I did not scream. i could not; i was terrified. i just followed them.Β .Β .i blocked my mind. then they all raped me: A narrative inquiry on the onset of tonic immobility among women rape victims in Nigeria. | Gbahabo DD et al. | β | 2024 | β |
| Operationalizing the GRADE-equity criterion to inform guideline recommendations: application to a medical cannabis guideline. | Dewidar O et al. | β | 2024 | β |
| Patient engagement in designing, conducting, and disseminating clinical pain research: IMMPACT recommended considerations. | Haroutounian S et al. | β | 2024 | β |
| Patient participation in clinical trials conducted by principal investigators who speak one or more language(s) beyond english: Exploring ethnicity as proxy for language. | Rivelli A et al. | β | 2024 | β |
| Strategies to Implement a Community-Based, Longitudinal Cohort Study: The Whole Communities-Whole Health Case Study. | Bouchacourt L et al. | β | 2024 | β |
| The Inclusion of Underrepresented Populations in Cardiovascular Genetics and Epidemiology. | Chappell E et al. | β | 2024 | β |
| Understanding the determinants of sweet taste liking in the African and East Asian ancestry groups in the U.S.-A study protocol. | Cheung MM et al. | β | 2024 | β |
| Written language achievement in children and adolescents with neurofibromatosis type 1 and Plexiform Neurofibromas. | Siegel A et al. | β | 2024 | β |
| A Longitudinal View of Disparities in Insulin Pump Use Among Youth with Type 1 Diabetes: The SEARCH for Diabetes in Youth Study. | Everett EM et al. | β | 2023 | β |
| Comprehensive review of task-based neuroimaging studies of cognitive deficits in Alzheimer's disease using electrophysiological methods. | Casagrande CC et al. | β | 2023 | β |
| Diversity of Studies on Neighborhood Greenspace and Brain Health by Racialized/Ethnic Group and Geographic Region: A Rapid Review. | Besser LM et al. | β | 2023 | β |
| Effectiveness of eHealth weight management interventions in overweight and obese adults from low socioeconomic groups: a systematic review. | Myers-Ingram R et al. | β | 2023 | β |
| Enhancing inclusivity of older Black and African American adults in mental health research. | Auguste EJ et al. | β | 2023 | β |
| Locating longitudinal study participants 10 years after last contact: Contemporary approaches to sample retention. | Dimakos C et al. | β | 2023 | β |
| Mind-Body Intervention for Dysfunctional Breathing in Chronic Obstructive Pulmonary Disease: Feasibility Study and Lessons Learned. | Norweg AM et al. | β | 2023 | β |
| Perceived research burden of a novel therapeutic intervention: A study of transcranial magnetic stimulation for smoking cessation. | Shevorykin A et al. | β | 2023 | β |
| Prameha purvaroopa as diabetes risk predictor - trends from a retrospective cohort study of newly diagnosed type 2 diabetes patients. | Rastogi S et al. | β | 2023 | β |
| Representation of Race and Ethnicity in the Contemporary US Health Cohort All of Us Research Program. | Kathiresan N et al. | β | 2023 | β |
| The influence of socioeconomic status on the association between unhealthy lifestyle factors and adverse health outcomes: a systematic review. | Foster HME et al. | β | 2023 | β |
| The Role of Transportation in the Enrollment of Elderly African Americans into Exercise and Memory Study: GEMS Study. | Graham L et al. | β | 2023 | β |
| Understanding organizational perspectives from clinical research stakeholders involved in recruitment for biopharmaceutical-sponsored clinical trials in the United States: Recommendations for organizational initiatives to improve access and inclusivity in clinical research. | Johnson RR et al. | β | 2023 | β |
| What matters most to older adults: Racial and ethnic considerations in values for current healthcare planning. | Heintz HL et al. | β | 2023 | β |
| Assessment of Patient Health-Related Quality of Life and Functional Outcomes in Pediatric Acute Respiratory Distress Syndrome. | Ames SG et al. | β | 2022 | β |
| A systematic review of sociodemographic reporting and representation in eating disorder psychotherapy treatment trials in the United States. | Burnette CB et al. | β | 2022 | β |
| Challenges and opportunities in conducting research with older adults with dementia during COVID-19 and beyond. | Sharma RK et al. | β | 2022 | β |
| Characteristics of Asian-American Breast Cancer Survivors Retained in a 3-Month Technology-Based Intervention. | Yi JS et al. | β | 2022 | β |
| Confronting Racism in All Forms of Pain Research: Reframing Study Designs. | Letzen JE et al. | β | 2022 | β |
| Engaging Community Health Centers to understand their perceptions and interest in longitudinal cohort research on diabetes mellitus in Native Hawaiian communities: Initial insights from the WaimΔnalo community. | Mau MKLM et al. | β | 2022 | β |
| Ethical Issues in Social Media Recruitment for Clinical Studies: Ethical Analysis and Framework. | Zimmermann BM et al. | β | 2022 | β |
| If You Pay, Will They Come? Evaluating the Impact of Subsidies on Cessation Outcomes in the Walk or Run to Quit Program. | Wunderlich KB et al. | β | 2022 | β |
| Low-Income, Older African Americans' Engagement in and Perceptions of a Smartphone-Based Ecological Momentary Assessment Study of Physical Activity and Sedentary Behavior. | Kennedy-Malone L et al. | β | 2022 | β |
| Neuropathology Studies of Dementia in US Persons other than Non-Hispanic Whites. | Nguyen ML et al. | β | 2022 | β |
| Relationship Between Social Vulnerability Indicators and Trial Participant Attrition: Findings From the HYVALUE Trial. | Henderson KH et al. | β | 2022 | β |
| Strategies Associated with Retaining Participants in the Longitudinal National Alzheimer's Coordinating Center Uniform Data Set Study. | Salazar CR et al. | β | 2022 | β |
| Stressors and Acceptability of Services Among Black Caregivers of Persons With Memory Problems. | Ejem D et al. | β | 2022 | β |
| Stroke Symptoms as a Surrogate in Stroke Primary Prevention Trials: The CREST Experience. | Meschia JF et al. | β | 2022 | β |
| Successful Recruitment Strategies for Engaging Pregnant African American Women in Research. | Vaughan SE et al. | β | 2022 | β |
| The DUX-25 after Twenty-Five Years: New Analyses and Reference Data. | Koopman HM et al. | β | 2022 | β |
| The effectiveness of incentives for research participation: A systematic review and meta-analysis of randomized controlled trials. | Abdelazeem B et al. | β | 2022 | β |
| The Experiences and Needs of Families of Comatose Patients After Cardiac Arrest and Severe Neurotrauma: The Perspectives of National Key Stakeholders During a National Institutes of Health-Funded Workshop. | Muehlschlegel S et al. | β | 2022 | β |
| Willingness to participate in various nontherapeutic cancer research activities among urban and rural African American and Latinx healthy volunteers. | Scarinci IC et al. | β | 2022 | β |
| 2021 Alzheimer's disease facts and figures. | β | β | 2021 | β |
| Activity competence among infants and toddlers with developmental disabilities: Rasch analysis of the Infant Toddler Activity Card Sort (ITACS). | Hoyt CR et al. | β | 2021 | β |
| A scoping review of physical activity interventions for older adults. | Taylor J et al. | β | 2021 | β |
| Breast cancer worry in higher-risk women offered preventive therapy: a UK multicentre prospective study. | Lloyd KE et al. | β | 2021 | β |
| Cardiovascular health status of taxi/for-hire vehicle drivers in the United States: A systematic review. | Mirpuri S et al. | β | 2021 | β |
| Community-Engaged Approaches for Minority Recruitment Into Clinical Research: A Scoping Review of the Literature. | Wieland ML et al. | β | 2021 | β |
| Development and evaluation of MADDIE: Method to Acquire Delivery Date Information from Electronic health records. | CanelΓ³n SP et al. | β | 2021 | β |
| Effectiveness of the Body Project eating disorder prevention program for different racial and ethnic groups and an evaluation of the potential benefits of ethnic matching. | Stice E et al. | β | 2021 | β |
| Engaging Underrepresented Communities in Health Research: Lessons Learned. | Yu Z et al. | β | 2021 | β |
| Enhancing Recruitment and Retention of Minority Populations for Clinical Research in Pulmonary, Critical Care, and Sleep Medicine: An Official American Thoracic Society Research Statement. | Thakur N et al. | β | 2021 | β |
| Feasibility of a social media-based weight loss intervention designed for low-SES adults. | Cavallo DN et al. | β | 2021 | β |
| Increasing Diversity in Radiology and Molecular Imaging: Current Challenges. | Fite BZ et al. | β | 2021 | β |
| Limitations in representative sampling of unpaid caregivers from minority ethnocultural backgrounds in a population-based survey. | Marani H | β | 2021 | β |
| Methods to Optimize Recruitment, Participation, and Retention Among Vulnerable Individuals Participating in a Longitudinal Clinical Trial. | Doran K et al. | β | 2021 | β |
| Parent mental health and family functioning following diagnosis of CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative. | Sood E et al. | β | 2021 | β |
| Recruitment and retention of underrepresented and vulnerable populations to research. | Langer SL et al. | β | 2021 | β |
| Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Diverse Urban Neighborhoods. | Ferris EB et al. | β | 2021 | β |
| Recruitment of Black Adults into Cardiovascular Disease Trials. | Prasanna A et al. | β | 2021 | β |
| Recruitment Strategies to Optimize Participation by Diverse Populations. | Webber-Ritchey KJ et al. | β | 2021 | β |
| Resonate: Reaching Excellence Through Equity, Diversity, and Inclusion in ISMRM. | Warnert EAH et al. | β | 2021 | β |
| Retaining diverse adults with diabetes in a long-term trial: Strategies, successes, and lessons learned. | Nelson LA et al. | β | 2021 | β |
| Self-efficacy proxy predicts frailty incidence over time in non-institutionalized older adults. | Hladek MD et al. | β | 2021 | β |
| Ten Eleven things to facilitate participation of underrepresented groups in headache medicine research. | Begasse de Dhaem O et al. | β | 2021 | β |
| Toward dynamic phenotypes and the scalable measurement of human behavior. | Germine L et al. | β | 2021 | β |
| A cross-sectional survey examining motivation and beliefs to participating in a web-based prospective cohort study on nutrition and health among individuals with a low socioeconomic status. | CΓ΄tΓ© M et al. | β | 2020 | β |
| Addressing the Challenges of Recruitment and Retention in Sleep and Circadian Clinical Trials. | Yu SH et al. | β | 2020 | β |
| Advanced Cancer Patients' Changes in Accurate Prognostic Understanding and Their Psychological Well-Being. | George LS et al. | β | 2020 | β |
| A Walking Intervention Supplemented With Mobile Health Technology in Low-Active Urban African American Women With Asthma: Proof-of-Concept Study. | Nyenhuis SM et al. | β | 2020 | β |
| Barriers to diabetes awareness and self-help are influenced by people's demographics: perspectives of South Asians with type 2 diabetes. | Pardhan S et al. | β | 2020 | β |
| Characterizing Enrollment in Observational Studies of Duchenne Muscular Dystrophy by Race and Ethnicity. | Barnard AM et al. | β | 2020 | β |
| Clinical trial recruitment of adult African American smokers from economically disadvantaged urban communities. | Horn K et al. | β | 2020 | β |
| Communicating cancer risk in the primary care consultation when using a cancer risk assessment tool: Qualitative study with service users and practitioners. | Akanuwe JNA et al. | β | 2020 | β |
| Comparison of Recruitment Strategies for Engaging Older Minority Adults: Results From Take Heart. | Ramsay JE et al. | β | 2020 | β |
| Correlates related to follow-up in a community engagement program in North Central Florida. | Otufowora A et al. | β | 2020 | β |
| Development and Evaluation of MADDIE: Method to Acquire Delivery Date Information from Electronic Health Records | CanelΓ³n SP et al. | β | 2020 | β |
| Identifying the barriers and perceptions of non-Hispanic black and Hispanic/Latino persons with uncontrolled type 2 diabetes for participation in a home Telemonitoring feasibility study: a quantitative analysis of those who declined participation, withdrew or were non-adherent. | Tong T et al. | β | 2020 | β |
| Improving community participation in clinical and translational research: CTSA Sentinel Network proof of concept study. | Varma DS et al. | β | 2020 | β |
| Issues in Recruiting and Retaining Asian American Breast Cancer Survivors in a Technology-Based Intervention Study. | Im EO et al. | β | 2020 | β |
| Measurement Invariance of the Five Factor Model of Personality: Facet-Level Analyses Among Euro and Asian Americans. | Lui PP et al. | β | 2020 | β |
| Missing the Mark: The Complexity of African American Dementia Family Caregiving. | Brewster GS et al. | β | 2020 | β |
| Racial disparity in atherosclerotic cardiovascular disease in hospitalized patients with diabetes 2005-2015: Potential warning signs for future U.S. public health. | Sidhu GS et al. | β | 2020 | β |
| Racial/ethnic concordance between patients and researchers as a predictor of study attrition. | Mindlis I et al. | β | 2020 | β |
| Recruiting Older Adults With Functional Difficulties Into a Community-Based Research Study: Approaches and Costs. | Nkimbeng M et al. | β | 2020 | β |
| Recruitment and enrollment of African Americans into health promoting programs: the effects of health promoting programs on cardiovascular disease risk study. | Okhomina VI et al. | β | 2020 | β |
| Recruitment and retention of participants from socioeconomically deprived communities: lessons from the Awareness and Beliefs About Cancer (ABACus3) Randomised Controlled Trial. | Kolovou V et al. | β | 2020 | β |
| Retaining Adolescent and Young Adult Participants in Research During a Pandemic: Best Practices From Two Large-Scale Developmental Neuroimaging Studies (NCANDA and ABCD). | Nooner KB et al. | β | 2020 | β |
| Use of Telephone and Digital Channels to Engage Socioeconomically Disadvantaged Adults in Health Disparities Research Within a Social Service Setting: Cross-Sectional Study. | Alcaraz KI et al. | β | 2020 | β |
| Beliefs Related to Participation in a Large Web-Based Prospective Survey on Diet and Health Among Individuals With a Low Socioeconomic Status: Qualitative Study. | CΓ΄tΓ© M et al. | β | 2019 | β |
| Biomarkers for Alzheimer Dementia in Diverse Racial and Ethnic Minorities-A Public Health Priority. | Barnes LL | β | 2019 | β |
| Differences in Longitudinal Disease Activity Between Research Cohort and Noncohort Participants with Rheumatoid Arthritis Using Electronic Health Record Data. | Gianfrancesco MA et al. | β | 2019 | β |
| Evaluation Design of EFFICHRONIC: The Chronic Disease Self-Management Programme (CDSMP) Intervention for Citizens with a Low Socioeconomic Position. | Tan SS et al. | β | 2019 | β |
| Facebook ads to the rescue? Recruiting a hard to reach population into an Internet-based behavioral health intervention trial. | Wozney L et al. | β | 2019 | β |
| Facilitators and barriers to successful recruitment into a large comparative effectiveness trial: a qualitative study. | Behringer-Massera S et al. | β | 2019 | β |
| Increasing Diversity in Clinical Trials: Overcoming Critical Barriers. | Clark LT et al. | β | 2019 | β |
| Mirror meetings with frail older people and multidisciplinary primary care teams: Process and impact analysis. | Grol S et al. | β | 2019 | β |
| A tripartite model for recruiting African-Americans into fatherhood intervention research. | Julion WA et al. | β | 2018 | β |
| Challenge and Yield of Enrolling Racially and Ethnically Diverse Patient Populations in Low Event Rate Clinical Trials. | Sheffet AJ et al. | β | 2018 | β |
| Changes in Alcohol, Tobacco, and Other Drug Use Over Five Years After Receiving Versus Being Denied a Pregnancy Termination. | Roberts SCM et al. | β | 2018 | β |
| Conceptualization, operationalization, and content validity of the EQOL-questionnaire measuring quality of life and participation for persons with disabilities. | Jespersen LN et al. | β | 2018 | β |
| Engaging African American Women in Community-Based Health Promotion Programs: Key-Informant Recommendations. | Holt JM et al. | β | 2018 | β |
| Facilitators and barriers of participation in a longitudinal research on migrant families in Badalona (Spain): A qualitative approach. | Hernando C et al. | β | 2018 | β |
| Feasibility and Acceptability of Dietary Intake Assessment Via 24-Hour Recall and Food Frequency Questionnaire among Women with Low Socioeconomic Status. | DeBiasse MA et al. | β | 2018 | β |
| Inclusion of special populations in clinical research: important considerations and guidelines. | Winter SS et al. | β | 2018 | β |
| Nutrition Literacy among Cancer Survivors: Feasibility Results from the Healthy Eating and Living Against Breast Cancer (HEAL-BCa) Study: a Pilot Randomized Controlled Trial. | Parekh N et al. | β | 2018 | β |
| Post-GWAS in Psychiatric Genetics: A Developmental Perspective on the "Other" Next Steps. | Dick DM et al. | β | 2018 | β |
| Race/Ethnicity and Retention in Traumatic Brain Injury Outcomes Research: A Traumatic Brain Injury Model Systems National Database Study. | Sander AM et al. | β | 2018 | β |
| Recruitment Techniques and Strategies in a Community-Based Colorectal Cancer Screening Study of Men and Women of African Ancestry. | Davis SN et al. | β | 2018 | β |
| Relapse/Recurrence Prevention in Major Depressive Disorder: 26-Month Follow-Up of Mindfulness-Based Cognitive Therapy Versus an Active Control. | Shallcross AJ et al. | β | 2018 | β |
| Retention of Ethnic Participants in Longitudinal Studies. | Singh P et al. | β | 2018 | β |
| Retention strategies in longitudinal cohort studies: a systematic review and meta-analysis. | Teague S et al. | β | 2018 | β |
| Strategies for conducting health research with Latinos during times of political incivility. | Sage R et al. | β | 2018 | β |
| Texting to Reduce Alcohol Misuse (TRAM): main findings from a randomized controlled trial of a text message intervention to reduce binge drinking among disadvantaged men. | Crombie IK et al. | β | 2018 | β |
| A Personal Touch: The Most Important Strategy for Recruiting Latino Research Participants. | GarcΓa AA et al. | β | 2017 | β |
| APOEΞ΅4 impacts up-regulation of brain-derived neurotrophic factor after a six-month stretch and aerobic exercise intervention in mild cognitively impaired elderly African Americans: A pilot study. | Allard JS et al. | β | 2017 | β |
| A Research Agenda for Communication Scholars in the Precision Medicine Era. | Scherr CL et al. | β | 2017 | β |
| Predictors of successful telephone follow-up in a multicenter study of infants with severe bronchiolitis. | Wu V et al. | β | 2017 | β |
| Rural Shop-Based Health Program Planning: a Formative Research Approach Among Owners. | Hall MB et al. | β | 2017 | β |
| Strategies and Challenges in Recruiting Black Immigrant Mothers for a Community-Based Study on Child Nutritional Health in Ottawa, Canada. | Blanchet R et al. | β | 2017 | β |
| Sustaining Engagement in Longitudinal Research With Vulnerable Families: A Mixed-Methods Study of Attrition. | Ginn CS et al. | β | 2017 | β |
| Technology-based interventions for weight management: current randomized controlled trial evidence and future directions. | Kozak AT et al. | β | 2017 | β |
| The Feasibility of Using Facebook, Craigslist, and Other Online Strategies to Recruit Young African American Women for a Web-Based Healthy Lifestyle Behavior Change Intervention. | Staffileno BA et al. | β | 2017 | β |
| The Influence of Race and Ethnicity on Becoming a Human Subject: Factors Associated with Participation in Research. | Garza MA et al. | β | 2017 | β |
| The use of sodium-glucose cotransporter 2 inhibitors in patients with type 2 diabetes and hypertension: a focus on African-American populations. | Kountz DS | β | 2017 | β |
| A Comparison Between Caucasians and African Americans in Willingness to Participate in Cancer Clinical Trials: The Roles of Knowledge, Distrust, Information Sources, and Religiosity. | Meng J et al. | β | 2016 | β |
| A parent-based intervention to promote healthy eating and active behaviours in pre-school children: evaluation of the MEND 2-4 randomized controlled trial. | Skouteris H et al. | β | 2016 | β |
| A Report of the Women's Health Congress Workshop on The Health of Women of Color: A Critical Intersection at the Corner of Sex/Gender and Race/Ethnicity. | Plank-Bazinet JL et al. | β | 2016 | β |
| A review of approaches to improve participation of culturally and linguistically diverse populations in clinical trials. | Hughson JA et al. | β | 2016 | β |
| Association between Reactive Attachment Disorder/Disinhibited Social Engagement Disorder and Emerging Personality Disorder: A Feasibility Study. | Mirza K et al. | β | 2016 | β |
| Cluster randomized trial assessing the effects of rapid ethical assessment on informed consent comprehension in a low-resource setting. | Addissie A et al. | β | 2016 | β |
| Cranial Magnetic Resonance Imaging in Elderly American Indians: Design, Methods, and Implementation of the Cerebrovascular Disease and Its Consequences in American Indians Study. | Suchy-Dicey AM et al. | β | 2016 | β |
| Culturally and Linguistically Diverse Populations in Medical Research: Perceptions and Experiences of Older Italians, Their Families, Ethics Administrators and Researchers. | Woodward-Kron R et al. | β | 2016 | β |
| Enrolling African-American and Latino patients with asthma in comparative effectiveness research: Lessons learned from 8 patient-centered studies. | Kramer CB et al. | β | 2016 | β |
| Guidelines for research recruitment of underserved populations (EERC). | Matsuda Y et al. | β | 2016 | β |
| Leiomyoma therapeutic options: is it now prime time for stratified medicine? | Bradley LD et al. | β | 2016 | β |
| Levels of Participants Satisfaction with Initial Contact and Examination Visit: The Hispanic Community Health Study/Study of Latinos (HCHS/SOL). | Talavera AC et al. | β | 2016 | β |
| Moderators and mediators of the relationship between receiving versus being denied a pregnancy termination and subsequent binge drinking. | Roberts SC et al. | β | 2016 | β |
| Multiple sclerosis in First Nations Canadians: A pilot comparison study. | Marrie RA et al. | β | 2016 | β |
| Recruiting Diverse Smokers: Enrollment Yields and Cost. | Brodar KE et al. | β | 2016 | β |
| The influence of caregivers and behavioral and psychological symptoms on nursing home placement of persons with Alzheimer's disease: A matched case-control study. | Porter CN et al. | β | 2016 | β |
| Using Citizen Scientists to Gather, Analyze, and Disseminate Information About Neighborhood Features That Affect Active Living. | Winter SJ et al. | β | 2016 | β |
| What does caring mean to nursing and social work students? | Bagdonaite-Stelmokiene R et al. | β | 2016 | β |
| A Multipronged, Adaptive Approach for the Recruitment of Diverse Community-Residing Elders with Memory Impairment: The MIND at Home Experience. | Samus QM et al. | β | 2015 | β |
| Association between education and quality of diabetes care in Switzerland. | Flatz A et al. | β | 2015 | β |
| Culturally Competent Strategies for Recruitment and Retention of African American Populations into Clinical Trials. | Otado J et al. | β | 2015 | β |
| Effect of abortion vs. carrying to term on a woman's relationship with the man involved in the pregnancy. | Mauldon J et al. | β | 2015 | β |
| It Could Be a Pearl to You: Exploring Recruitment and Retention of the Program to Encourage Active, Rewarding Lives (PEARLS) With Hard-to-Reach Populations. | Steinman L et al. | β | 2015 | β |
| Knowledge and attitudes regarding clinical trials and willingness to participate among prostate cancer patients. | Kaplan CP et al. | β | 2015 | β |
| Participant Retention in a Longitudinal National Telephone Survey of African American Men and Women. | Holt CL et al. | β | 2015 | β |
| Receiving Versus Being Denied a Pregnancy Termination and Subsequent Alcohol Use: A Longitudinal Study. | Roberts SC et al. | β | 2015 | β |
| Results of a community translation of the "Women Take PRIDE" heart disease self-management program. | Gallant MP et al. | β | 2015 | β |
| Strategies for research recruitment and retention of older adults of racial and ethnic minorities. | McDougall GJ et al. | β | 2015 | β |
| Strategies to Build Trust and Recruit African American and Latino Community Residents for Health Research: A Cohort Study. | SankarΓ© IC et al. | β | 2015 | β |
| The effect of abortion on having and achieving aspirational one-year plans. | Upadhyay UD et al. | β | 2015 | β |
| African American women's perceptions and attitudes regarding participation in medical research: the Mayo Clinic/The Links, Incorporated partnership. | Brewer LC et al. | β | 2014 | β |
| A qualitative exploration of fishing and fish consumption in the Gullah/Geechee culture. | Ellis JH et al. | β | 2014 | β |
| Capturing the stories behind the numbers: the Auckland Regional Community Stroke Study (ARCOS IV), a qualitative study. | Rutherford SJ et al. | β | 2014 | β |
| Improving retention of very old participants in longitudinal research: experiences from the Newcastle 85+ study. | Davies K et al. | β | 2014 | β |
| Individually-tailored support for ethnically-diverse caregivers: enhancing our understanding of what is needed and what works. | Rosenthal Gelman C et al. | β | 2014 | β |
| Receiving versus being denied an abortion and subsequent drug use. | Roberts SCM et al. | β | 2014 | β |
| Strategies to enhance participant recruitment and retention in research involving a community-based population. | McCullagh MC et al. | β | 2014 | β |
| The influence of health disparities on targeting cancer prevention efforts. | Zonderman AB et al. | β | 2014 | β |
| The role of intimate partners in women's reasons for seeking abortion. | Chibber KS et al. | β | 2014 | β |
| Challenges and success of recruiting and retention for a culturally tailored diabetes prevention program for adults of Mexican descent. | Vincent D et al. | β | 2013 | β |
| Characteristics of women lost to follow-up in cardiovascular community health interventions: findings from the Sister to Sister campaign. | Naderi S et al. | β | 2013 | β |
| Characterizing researchers by strategies used for retaining minority participants: results of a national survey. | Butler J et al. | β | 2013 | β |
| Participation and retention of youth with perinatal HIV infection in mental health research studies: the IMPAACT P1055 psychiatric comorbidity study. | Williams PL et al. | β | 2013 | β |
| Recruitment and Retention for Community-Based eHealth Interventions with Populations of Low Socioeconomic Position: Strategies and Challenges. | Nagler RH et al. | β | 2013 | β |
| Recruitment of black subjects for a natural history study of intracerebral hemorrhage. | Edwards DF et al. | β | 2013 | β |
| ResearchTracking: Monitoring gender and ethnic minority recruitment and retention in cancer symptom studies. | Huang HY et al. | β | 2013 | β |
| Under-representation of minority ethnic groups in research--call for action. | Redwood S et al. | β | 2013 | β |
| Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: a structured interview study. | Sanderson SC et al. | β | 2013 | β |
| A model for the design and implementation of a participant recruitment registry for clinical studies of older adults. | Dowling NM et al. | β | 2012 | β |
| A weight-loss intervention program designed for Mexican-American women: cultural adaptations and results. | Lindberg NM et al. | β | 2012 | β |
| "Communities" in community engagement: lessons learned from autism research in South Korea and South Africa. | Grinker RR et al. | β | 2012 | β |
| Harnessing the power of crowds: crowdsourcing as a novel research method for evaluation of acne treatments. | Armstrong AW et al. | β | 2012 | β |
| Lessons learned obtaining informed consent in research with vulnerable populations in community health center settings. | Riden HE et al. | β | 2012 | β |
| Multisite recruitment and data collection among older adults: exploring methods to conserve human and financial resources. | McCarthy VL et al. | β | 2012 | β |
| Recruitment and enrollment of caregivers for a lifestyle physical activity clinical trial. | Etkin CD et al. | β | 2012 | β |
| Recruitment of Hispanics into an observational study of chronic kidney disease: the Hispanic Chronic Renal Insufficiency Cohort Study experience. | Lora CM et al. | β | 2012 | β |
| 2011 Alzheimer's disease facts and figures. | β | β | 2011 | β |
| Introduction to the science of recruitment and retention among ethnically diverse populations. | Dilworth-Anderson P | β | 2011 | β |