Quality of Life (QOL) of patients with Gilles de la Tourette's syndrome.
paper
Cited
Public
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- Authors
- Elstner, K; Selai, C E; Trimble, M R; Robertson, M M
- Year
- 2001
- Journal
- Acta psychiatrica Scandinavica
- PMID
- 11202129
- DOI
- 10.1034/j.1600-0447.2001.00147.x
OBJECTIVE: This is the first study to investigate the Quality of Life (QOL) of patients with Gilles de la Tourette's Syndrome (GTS). METHOD: One hundred and three out-patients with GTS completed a semi-structured interview and 90 of these completed questionnaires screening for depression, anxiety and obsessive-compulsive behaviour. QOL was measured with the SF-36 and the Quality of Life Assessment Schedule (QOLAS). RESULTS: Patients with GTS showed significantly worse QOL than a general population sample. They had better QOL than patients with intractable epilepsy as measured by the QOLAS, although the SF-36 showed significant differences on the subscales Role Limitation due to physical problems and Social Functioning only. Factors influencing QOL domains were employment status, tic severity, obsessive-compulsive behaviour, anxiety and depression. CONCLUSION: QOL is impaired in patients with GTS. Measurement of QOL could be used alongside conventional measurements to assess benefit of treatment. We recommend the QOLAS and SF-36 be used.
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| Title | Authors | Journal | Year | Link |
|---|---|---|---|---|
| Patient Perspectives on Tic-Related Impairment: A Qualitative Examination. | Kuhn E et al. | β | 2025 | β |
| Study protocol for a parallel-group randomized controlled trial of internet-delivered behavior therapy for adults with Tourette syndrome. | Sannemalm M et al. | β | 2025 | β |
| The Association of Quality of Life with Psychosocial Factors in Adolescents with Tourette Syndrome. | Watson KH et al. | β | 2025 | β |
| Auditory gating and its clinical correlates in adults with chronic tic disorder and neurotypical adults. | Isaacs DA et al. | β | 2024 | β |
| Family functioning mediation in tic severity and quality of life for children with Tourette syndrome. | Hu SJ et al. | β | 2024 | β |
| Oral aripiprazole in the treatment of tic disorders in China: a cost-effectiveness analysis based on a mapping algorithm derived from a Chinese children and adolescents population. | Chen C et al. | β | 2024 | β |
| Perspectives from Adults with Tourette Syndrome on Research Priorities and Registry Development: A Focus Group Study. | Isaacs DA et al. | β | 2024 | β |
| Dimensional Assessment of Depression and Anxiety in a Clinical Sample of Adults With Chronic Tic Disorder. | Isaacs DA et al. | β | 2023 | β |
| How does Tourette syndrome impact adolescents' daily living? A text mining study. | Atkinson-Clement C et al. | β | 2023 | β |
| The French version of the Gilles de la Tourette Syndrome Quality of Life Scale for adolescents (GTS-QOL-French-Ado): Adaptation and psychometric evaluation. | Jalenques I et al. | β | 2022 | β |
| An International Survey of Health Care Services Available to Patients With Tourette Syndrome. | Bhikram T et al. | β | 2021 | β |
| Clinical Correlates of Health-Related Quality of Life in Adults With Chronic Tic Disorder. | Isaacs DA et al. | β | 2021 | β |
| Genetic architecture of Tourette syndrome: our current understanding. | DomΓ¨nech L et al. | β | 2021 | β |
| Longitudinal Bidirectional Relationships Between Maternal Depressive/Anxious Symptoms and Children's Tic Frequency in Early Adolescence. | Yagi T et al. | β | 2021 | β |
| Cannabis Improves Obsessive-Compulsive Disorder-Case Report and Review of the Literature. | Szejko N et al. | β | 2020 | β |
| Cross-cultural adaptation and psychometric evaluation of the French version of the Gilles de la Tourette Syndrome Quality of Life Scale (GTS-QOL). | Jalenques I et al. | β | 2020 | β |
| Gilles de la Tourette Syndrome: advice in the times of COVID-19. | Robertson MM et al. | β | 2020 | β |
| Attention bias for social threat in youth with tic disorders: Links with tic severity and social anxiety. | Pile V et al. | β | 2019 | β |
| Effects of comorbidity on Tourette's tic severity and quality of life. | Huisman-van Dijk HM et al. | β | 2019 | β |
| Treatment of Gilles de la Tourette Syndrome with Cannabis-Based Medicine: Results from a Retrospective Analysis and Online Survey. | Milosev LM et al. | β | 2019 | β |
| Self-esteem in adults with Tourette syndrome and chronic tic disorders: The roles of tic severity, treatment, and comorbidity. | Weingarden H et al. | β | 2018 | β |
| Gilles de la Tourette Syndrome, Depression, Depressive Illness, and Correlates in a Child and Adolescent Population. | Rizzo R et al. | β | 2017 | β |
| The English Version of the Gilles de la Tourette Syndrome-Quality of Life Scale for Children and Adolescents (C&A-GTS-QOL). | Su MT et al. | β | 2017 | β |
| The Subjective Quality of Life in Young People With Tourette Syndrome in China. | Liu S et al. | β | 2017 | β |
| Association of Tic Disorders and Enterovirus Infection: A Nationwide Population-Based Study. | Tsai CS et al. | β | 2016 | β |
| Comorbidities, Social Impact, and Quality of Life in Tourette Syndrome. | Eapen V et al. | β | 2016 | β |
| Depression in Tourette syndrome: A controlled and comparison study. | Piedad JC et al. | β | 2016 | β |
| Health-related quality of life in patients with Gilles de la Tourette syndrome at the transition between adolescence and adulthood. | Silvestri PR et al. | β | 2016 | β |
| Stigma in youth with Tourette's syndrome: a systematic review and synthesis. | Malli MA et al. | β | 2016 | β |
| The Effect of a New Therapy for Children with Tics Targeting Underlying Cognitive, Behavioral, and Physiological Processes. | Leclerc JB et al. | β | 2016 | β |
| The effects of Gilles de la Tourette syndrome and other chronic tic disorders on quality of life across the lifespan: a systematic review. | Evans J et al. | β | 2016 | β |
| Tourette syndrome, co-morbidities and quality of life. | Eapen V et al. | β | 2016 | β |
| A personal 35 year perspective on Gilles de la Tourette syndrome: assessment, investigations, and management. | Robertson MM | β | 2015 | β |
| A personal 35 year perspective on Gilles de la Tourette syndrome: prevalence, phenomenology, comorbidities, and coexistent psychopathologies. | Robertson MM | β | 2015 | β |
| Sources of Disability in Tourette Syndrome: Children vs. Adults. | Kompoliti K | β | 2015 | β |
| Association between pre- and perinatal exposures and Tourette syndrome or chronic tic disorder in the ALSPAC cohort. | Mathews CA et al. | β | 2014 | β |
| Functional outcome and quality of life in Tourette's syndrome after deep brain stimulation of the posteroventrolateral globus pallidus internus: long-term follow-up. | Dehning S et al. | β | 2014 | β |
| Quality of life and self-esteem in children with chronic tic disorder. | HesapΓ§Δ±oΔlu ST et al. | β | 2014 | β |
| The portrayal of Tourette Syndrome in film and television. | Calder-Sprackman S et al. | β | 2014 | β |
| The role of parental perceptions of tic frequency and intensity in predicting tic-related functional impairment in youth with chronic tic disorders. | Espil FM et al. | β | 2014 | β |
| The Semiology of Tics, Tourette's, and Their Associations. | Ganos C et al. | β | 2014 | β |
| Tourette syndrome and chronic tic disorder are associated with lower socio-economic status: findings from the Avon Longitudinal Study of Parents and Children cohort. | Miller LL et al. | β | 2014 | β |
| A controlled study of personality and affect in Tourette syndrome. | Eddy CM et al. | β | 2013 | β |
| Disease-specific quality of life in young patients with tourette syndrome. | Cavanna AE et al. | β | 2013 | β |
| 'Everybody just thinks I'm weird': a qualitative exploration of the psychosocial experiences of adolescents with Tourette syndrome. | Wadman R et al. | β | 2013 | β |
| Genome-wide association study of Tourette's syndrome. | Scharf JM et al. | β | 2013 | β |
| Health care needs of children with Tourette syndrome. | Bitsko RH et al. | β | 2013 | β |
| "Not just right experiences" in patients with Tourette syndrome: complex motor tics or compulsions? | Neal M et al. | β | 2013 | β |
| On being your own worst enemy: an investigation of socially inappropriate symptoms in Tourette syndrome. | Eddy CM et al. | β | 2013 | β |
| Practice parameter for the assessment and treatment of children and adolescents with tic disorders. | Murphy TK et al. | β | 2013 | β |
| The impact of Tourette Syndrome in adults: results from the Tourette Syndrome impact survey. | Conelea CA et al. | β | 2013 | β |
| Tourette syndrome and risk of depression: a population-based cohort study in Taiwan. | Chou IC et al. | β | 2013 | β |
| A phenomenological investigation of women with Tourette or other chronic tic disorders. | Lewin AB et al. | β | 2012 | β |
| Obsessive-compulsive and tic-related disorders. | Franklin ME et al. | β | 2012 | β |
| Predictors during childhood of future health-related quality of life in adults with Gilles de la Tourette syndrome. | Cavanna AE et al. | β | 2012 | β |
| Prevalence of Tourette syndrome and chronic tics in the population-based Avon longitudinal study of parents and children cohort. | Scharf JM et al. | β | 2012 | β |
| Quality of life in adults with Gilles de la Tourette Syndrome. | Jalenques I et al. | β | 2012 | β |
| Randomized trial of behavior therapy for adults with Tourette syndrome. | Wilhelm S et al. | β | 2012 | β |
| The effects of comorbid obsessive-compulsive disorder and attention-deficit hyperactivity disorder on quality of life in tourette syndrome. | Eddy CM et al. | β | 2012 | β |
| The Gilles de la Tourette syndrome: the current status. | Robertson MM | β | 2012 | β |
| Tourette syndrome. | Cavanna AE et al. | β | 2012 | β |
| Gilles de la Tourette syndrome: the complexities of phenotype and treatment. | Robertson MM | β | 2011 | β |
| Neurofeedback training for tourette syndrome: an uncontrolled single case study. | Messerotti Benvenuti S et al. | β | 2011 | β |
| Quality of life in young people with Tourette syndrome: a controlled study. | Eddy CM et al. | β | 2011 | β |
| The role of impulse control disorders in Tourette syndrome: an exploratory study. | Frank MC et al. | β | 2011 | β |
| Behavioral interventions for tic disorders. | Franklin SA et al. | β | 2010 | β |
| Cost of illness in patients with Gilles de la Tourette's syndrome. | Dodel I et al. | β | 2010 | β |
| Psychosocial outcome and psychiatric comorbidity in older adolescents with Tourette syndrome: controlled study. | Gorman DA et al. | β | 2010 | β |
| The presence of attention-deficit hyperactivity disorder (ADHD) and obsessive-compulsive disorder worsen psychosocial and educational problems in Tourette syndrome. | Debes N et al. | β | 2010 | β |
| Children with Tourette disorder: a follow-up study in adulthood. | Altman G et al. | β | 2009 | β |
| Developmental and behavioral disorders grown up: Tourette's disorder. | Zinner SH et al. | β | 2009 | β |
| Neurosurgical treatment for Gilles de la Tourette syndrome: the Italian perspective. | Porta M et al. | β | 2009 | β |
| The behavioral spectrum of Gilles de la Tourette syndrome. | Cavanna AE et al. | β | 2009 | β |
| The diagnosis of Tourette's Syndrome: communication and impact. | Rivera-Navarro J et al. | β | 2009 | β |
| Factors influencing diagnosis delay in children with Tourette syndrome. | Shilon Y et al. | β | 2008 | β |
| Hassler and Dieckmann's seminal paper on stereotactic thalamotomy for Gilles de la Tourette syndrome: translation and critical reappraisal. | Rickards H et al. | β | 2008 | β |
| Psychosocial stress predicts future symptom severities in children and adolescents with Tourette syndrome and/or obsessive-compulsive disorder. | Lin H et al. | β | 2007 | β |
| Role of deep brain stimulation targeted to the pedunculopontine nucleus in Parkinson's disease. | Kenney C et al. | β | 2007 | β |
| Attitude and knowledge of high school pupils towards adolescents with special needs (Tourette's syndrome). | Brook U et al. | β | 2006 | β |
| Beck Depression Inventory is a useful screening tool for major depressive disorder in Gilles de la Tourette syndrome. | Snijders AH et al. | β | 2006 | β |
| Depressive symptomatology in young people with Gilles de la Tourette Syndrome-- a comparison of self-report scales. | Robertson MM et al. | β | 2006 | β |
| Mood disorders and Gilles de la Tourette's syndrome: An update on prevalence, etiology, comorbidity, clinical associations, and implications. | Robertson MM | β | 2006 | β |
| Tourette syndrome: the self under siege. | Leckman JF et al. | β | 2006 | β |
| Gilles de la Tourette's syndrome and its impact in the UK. | Stern JS et al. | β | 2005 | β |
| Measuring health-related quality of life in patients with progressive supranuclear palsy. | Schrag A et al. | β | 2005 | β |
| Cost effectiveness of cholinesterase inhibitors in the treatment of Alzheimer's disease: a review with methodological considerations. | Wimo A | β | 2004 | β |
| Indications of linkage and association of Gilles de la Tourette syndrome in two independent family samples: 17q25 is a putative susceptibility region. | Paschou P et al. | β | 2004 | β |
| Phenomenology of tics and natural history of tic disorders. | Leckman JF | β | 2003 | β |
| The Tourette's Disorder Scale (TODS): development, reliability, and validity. | Shytle RD et al. | β | 2003 | β |
| Long-term follow-up of topiramate and lamotrigine: a perspective on quality of life. | Kaiser S et al. | β | 2002 | β |
| Quality of life in young Italian patients with primary headache. | Nodari E et al. | β | 2002 | β |
| Tourette's syndrome. | Leckman JF | β | 2002 | β |