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Chunk #11 — What legacy will we leave for research participants of this generation?

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Genomic data-sharing: what will be our legacy?
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In addition, the general public is knowledgeable and concerned about how genomic test results may affect future medical treatment or insurance coverage. Although it is prohibited under the Genetic Information Nondiscrimination Act for health insurance groups to use genetic information to determine eligibility and coverage, the confidentiality of such information remains a concern for individuals, especially those living in underserved and ethnically diverse communities (Goldenberg et al., 2013).