Genomic data-sharing: what will be our legacy?
paper
Cited
Public
- Authors
- Callier, Shawneequa; Husain, Rajah; Simpson, Rachel
- Year
- 2014
- Journal
- Frontiers in genetics
- PMID
- 24634673
- DOI
- 10.3389/fgene.2014.00034
- PMCID
- PMC3942643
Prior to 1974, the Tuskegee Syphilis experiments, expansive use of the HeLa cells, and other blatant instances of research abuse pervaded the medical research field. Ongoing challenges to informed consent, privacy and data-sharing will influence the stories that research participants today share with future generations. This has significant implications for the advancement of genomic science, and the public's perception of genomic research.
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In this knowledge base
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| Review: Genetic research on alcohol use outcomes in African American populations: A review of the literature, associated challenges, and implications. | 2017 | 28240821 |
External
| Title | Authors | Journal | Year | Link |
|---|---|---|---|---|
| The reproducibility of COVID-19 data analysis: paradoxes, pitfalls, and future challenges. | Serio CD et al. | — | 2022 | → |
| International Society of Psychiatric Genetics Ethics Committee: Issues facing us. | Lázaro-Muñoz G et al. | — | 2019 | → |
| Moral Duties of Genomics Researchers: Why Personalized Medicine Requires a Collective Approach. | Vos S et al. | — | 2017 | → |
| Review: Genetic research on alcohol use outcomes in African American populations: A review of the literature, associated challenges, and implications. | Dick DM et al. | — | 2017 | → |
| Lessons from HeLa Cells: The Ethics and Policy of Biospecimens. | Beskow LM | — | 2016 | → |
| Biomedical Data Sharing and Reuse: Attitudes and Practices of Clinical and Scientific Research Staff. | Federer LM et al. | — | 2015 | → |
| The need to redefine genomic data sharing: A focus on data accessibility. | van Schaik TA et al. | — | 2014 | → |