Fortunately, scientists see the urgency for reform, and have the advanced digital tools and sequencing technologies to develop and analyze datasets that are more representative of the global population. Further, because of the scientific value of large genomic data-sets, prevailing regulations and policies favor a collaborative research environment that encourages data-sharing across international jurisdictions. These advances are not without consequence, of course, and the future impact of the unprecedented data-sharing and storing that is set to take place in the coming years intensifies longstanding challenges related to informational privacy and public expectations about benefit sharing and control over biomedical samples.
