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Chunk #15 — Results — Consent Type and Data Sharing Decisions

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To share or not to share: a randomized trial of consent for data sharing in genome research.
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Following the debriefing, participants were given an opportunity to change their data release option; the majority (67.8%) stayed with their original choice. Of those who changed, only three chose an option that was less restrictive then their original choice (i.e., changed from no release to restricted release). Those randomized to tiered consent were less likely to change (21.2%) than those randomized to binary (37.7%) or traditional consent (37.9%) (chi-square test, p=0.01).