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Chunk #14 — Results — Consent Type and Data Sharing Decisions

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To share or not to share: a randomized trial of consent for data sharing in genome research.
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All eligible participants randomized to traditional consent agreed to participate in the genomic study and by default to public release. Most participants (84.9%) randomized to binary consent chose public data release, while the remaining individuals (15.1%) opted out of data sharing (no release). The majority of participants (66.4%) randomized to tiered consent agreed to public data release, less than a fifth (19.5%) chose restricted release, and the remainder (14.1%) chose no release.