A smaller proportion of AA participants (61%) were willing to participate in a WGS study than non-AA participants (80%) (Fig 1A). This pattern of response was consistent at the start and end of focus group discussions. Parents were slightly less willing to allow their children to participate and the difference in frequency between AAs and non-AAs persisted (41% AA vs. 57% non-AA). Overall, 73% of participants indicated they would want at least one type of individual genetic result, although AAs less frequently wanted WGS results compared to non-AA (64% AA vs. 80% non-AA) (Fig 1B). Participants’ interest in receiving their children’s results were consistent. A minority of participants did not want to receive any results, either their children’s or their own, under any circumstances. Among 18 individuals who indicated that they would want “all results” or “everything” six were AA and 12 were non-AA participants.
