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Chunk #16 — RESULTS — Similarities and Differences between AA and non-AA perspectives

Source
Attitudes of African Americans toward return of results from exome and whole genome sequencing.
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AAs and non-AAs expressed several similar views about WGS and receiving WGS results. Among participants who wanted to receive results, both AAs and non-AAs sought to receive actionable results for common conditions (e.g. cancer, Alzheimer disease) and for conditions for which there was contributing family history. These participants also valued choice around receiving results. Yet, AAs’ perspectives differed from those of non-AAs in several ways. For instance, while non-AAs were concerned about health and long-term care insurance, AAs instead expressed concerns about a lack of access to health care that would limit their ability to follow up on actionable results. Furthermore, while non-AAs were concerned about unauthorized access to their WGS results (e.g., computer hackers), AAs were concerned about law enforcement accessing identifiable genetic information.