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Chunk #17 — RESULTS — Similarities and Differences between AA and non-AA perspectives

Source
Attitudes of African Americans toward return of results from exome and whole genome sequencing.
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AAs expressed several unique perspectives that fall outside the bounds of what has, to this point, constituted the discourse on return of results (Table II). While non-AAs and some AAs expected their health care providers to be involved in receipt of their results and would share their results with their providers, some AAs expressed substantial distrust in the health care system and research such that they preferred not to involve their care providers in their results return. They preferred to review their results independently. Non-AAs focused on how results would shape future actions to improve their health whereas AAs were more concerned about the psychosocial impacts of WGS results. While non-AAs focused on the individual benefits of receiving results, AAs also emphasized racial justice as well as community and societal benefits specific to AAs. Last, AAs perceived the process of making decisions about and interpreting the meaning of WGS results to be communal, involving their social groups and community institutions.