Many respondents also raised concerns about family members who are often required to participate in genetic studies, or whose health history is required as part of those studies. For example, someone expressed the idea that while he understood that certain illnesses may run in his family, it would be extremely difficult to convince family members to participate in the studies that he has participated in. “If it involves getting other family members involved also, it could be very awkward sort of. Something that’s kind of very private, psychiatric disorders, and there’s a lot of shame in society about it. So when you want to involve other family members it becomes a very touchy issue. A lot of families, I don’t think they’re up for all this. I think it could cause great disturbance and friction. As for as me, I don’t have any problem with it ‘cause I’m fascinated by human behavior. But I could never imagine my family being in this room doing this survey in a million years. And they would not want to hear anything about their predispositions.”
