The personal and institutional treatment of research participants was an additional area of great concern. Respondents voiced objections to unethical experimentation, and concerns about the ultimate purpose of the research were articulated as well. “I would feel they would be using me as a guinea pig—through genetic research they might try to help other people, but I would feel like I’m not going to be no guinea pig for nobody else. That would be my barrier.”“I was just thinking in terms of people who become part of the genetic research program. I wouldn’t want to be getting foreign drugs to me or things of that nature that have to be ingested in one way or the other, create another problem in the guise of trying to help me—to help with the research and help me get better. But something else might happen.”“I think that there is a fear of the unknown. There are always ethical considerations about how the research is done, and what it is, and what are the goals of the research. And, of course, the ethics of
