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Chunk #56 — (3) Negotiating Genomics in the Public Square16 — (d) Negotiating Genomics’ Social Contract

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What research ethics should learn from genomics and society research: lessons from the ELSI Congress of 2011.
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of credit for breakthrough discoveries, which is crucial for career advancement and future funding through grants or patent revenue [E-5]. On a broader scale, questions have emerged as to the feasibility, for current hypothesis-driven research, of applying the rapid data-sharing principles that were designed to facilitate the generation of raw sequence data for the Human Genome Project [E-5]. This model fits well with recommendations on genomic data sharing proposed by recent expert groups, which advocate for longitudinal partnership with participants [G-2].