The Steering Committee developed the following criteria to guide the working groups in their deliberations:Working groups should select well-established measures. Well-established measures may have been used over time and/or come from highly regarded sources. The purpose of PhenX is not to develop new measures but to recommend measures that have been used successfully.The working group should select measures and accompanying protocols for acquiring the measures that can be used by scientists who do not have expertise in that particular domain.Measures are assessed with regard to burden for both study participants and investigators. The working groups are advised to select measures of relatively low burden to both investigators and participants. The working groups are asked to consider the time required to administer the protocol, the equipment and skills required, and the overall cost and complexity of data collection and analysis. A limited number of higher-burden measures may be included.Working groups should select measures that are expected to be relevant for at least the next few years.Working groups are encouraged to select protocols that are broadly applicable to a variety of populations.
