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Chunk #118 — PART III. CRYSTALLIZING 10 RECOMMENDATIONS — Recommendation 9

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Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
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Researchers in a biobank research system should strive to communicate aggregate results not only through the scholarly literature, but also to the population of interested contributors using accessible media such as newsletters, e-mail, and other means of communication appropriate for the population. Offering links to the scholarly literature allows those who are interested to pursue reported findings in greater depth. Primary researchers and the biobank should consider in advance how they will respond to follow-up inquiries from individual contributors wishing to pursue the individual importance of aggregate findings.