Chunk #99 — PART II. CORE QUESTIONS — F. What is the Content of those Responsibilities? Four Issues and Who Should Address Them — Step 4: Recontacting the contributor to offer the finding
Once an IF or IRR appropriate for return has been found and the contributor individual(s) re-identified, we reach the questions of who should recontact the contributor to offer the finding and how. In our prior project’s paper,1 we urged that return be conducted by an individual with the expertise to answer questions about the finding being returned. This may require a genetic counselor for genetic or genomic findings and another clinician for some other findings (such as an oncologist for cancer-related findings). At the same time, we recognized a limit to this return function. The goal was not to supply clinical care or a clinical work-up of the finding, but to put the participant in the position to make an informed decision about what next steps to take, including seeking clinical work-up and care. We urged that the professional conducting recontact be prepared to suggest clinicians for further pursuit of the finding, including for participants without health care insurance or other ready access to clinical care.
