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Chunk #25 — ETHICAL, SOCIAL, AND LEGAL CHALLENGES ASSOCIATED WITH GENETIC RESEARCH AND GENETIC TESTING

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Review: Genetic research on alcohol use outcomes in African American populations: A review of the literature, associated challenges, and implications.
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Several studies indicate that, when asked, AAs are interested in participating in genetic research78,79 and there are clear benefits for advancing genomic science. For example, in a study of 353 African American, European American, and Hispanic individuals, racial/ethnic groups did not differ in their willingness to participate in psychiatric genetic research; more than 70% in each group stated they were willing to participate.79 An exploratory study of factors associated with engagement in health-related genetic research among 212 African Americans found that 20% of participants had previously been involved in health-related research, and the majority of individuals who had not participated said they would be willing to provide family history and/or biological specimens for genetic research.80 Of note, 89% of the participants who had not previously been involved in a health-related study who expressed a willingness to participate reported they “had never been asked.” 80