Consistent with a broader range of expected risks and benefits, for some AAs, a provider-managed and -driven model for returning results may be unacceptable or less effective [Butrick et al., 2011]. AA participants shared stories about negative health care experiences that stress the importance of maintaining control over the receipt of results. These findings suggest that approaches and tools that allow for participants and patients to have greater autonomy in obtaining and sharing results may be a viable alternative to more conventional approaches to return of results. We found that many AAs expected to manage and share their results in a community context that suggested potential avenues of specifically engaging communities about managing results [Lemke et al., 2012]. These findings highlight that mechanisms to support people as they take their results to their families and communities may be important for returning results.
