The coordinating center at USC uses an electronic health record (Cerner Corporation, Kansas City, MO) a comprehensive implementation of a continuum of care record spanning inpatient, outpatient, procedural, and behavioral health care. As part of USC’s overall commitment to research, the institution is developing a parallel research oriented clinical data warehouse. Appropriate data governance allows for those patients who have given consent (such as in the GPC cohort) to have their records queried and then re-queried when updated. For our GPC cohort, this process will allow continuous expansion of the phenotypic data set. The majority of GPC participants reside in the Los Angeles region. The USC system and the Los Angeles County Department of Health Services are actively exploring the unique opportunity to amalgamate the research data warehouses across both organizations. The successful implementation of this will greatly enhance our ability to prospectively follow up our Los Angeles based participants. Parallel strategies are being developed with our collaborating sites for access to their local GPC participant’s EHR.
