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Chunk #77 — PART II. CORE QUESTIONS — F. What is the Content of those Responsibilities? Four Issues and Who Should Address Them — Step 1: Clarifying the criteria and roster

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Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
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example, may have already occurred). Biobanks typically take steps to de-identify data and samples before they are released to secondary researchers for analysis (requiring de-identification at the collection site or doing it at the biobank or depending on a third entity (sometimes referred to as a “trusted intermediary” or “honest broker”) to do this), and may take further affirmative steps to prevent re-identification (as urged, for example, by Brothers and Clayton16).