Informed consent: a broken contract.
paper
Cited
Public
Unavailable
- Authors
- Hayden, Erika Check
- Year
- 2012
- Journal
- Nature
- PMID
- 22722173
- DOI
- 10.1038/486312a
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In this knowledge base
| Title | Year | PMID |
|---|---|---|
| Review: Genetic research on alcohol use outcomes in African American populations: A review of the literature, associated challenges, and implications. | 2017 | 28240821 |
External
| Title | Authors | Journal | Year | Link |
|---|---|---|---|---|
| Overcoming recruitment hurdles in clinical trials: An investigation of remote consenting modalities and their impact on workload, workflow, and usability. | Sawant S et al. | — | 2024 | → |
| Creating ethics guidelines for artificial intelligence and big data analytics customers: The case of the consumer European insurance market. | Mullins M et al. | — | 2021 | → |
| Facing new challenges to informed consent processes in the context of translational research: the case in CARPEM consortium. | Jacquier E et al. | — | 2021 | → |
| Evaluating the Perceptions of Teleconsent in Urban and Rural Communities. | Khairat S et al. | — | 2019 | → |
| Facilitating the Informed Consent Process Using Teleconsent: Protocol for a Feasibility and Efficacy Study. | Khairat S et al. | — | 2018 | → |
| Health Research with Big Data: Time for Systemic Oversight. | Vayena E et al. | — | 2018 | → |
| The challenges of the expanded availability of genomic information: an agenda-setting paper. | Borry P et al. | — | 2018 | → |
| An overview of human genetic privacy. | Shi X et al. | — | 2017 | → |
| Review: Genetic research on alcohol use outcomes in African American populations: A review of the literature, associated challenges, and implications. | Dick DM et al. | — | 2017 | → |
| Did I Tell You That? Ethical Issues Related to Using Computational Methods to Discover Non-Disclosed Patient Characteristics. | Cato KD et al. | — | 2016 | → |
| Lessons from HeLa Cells: The Ethics and Policy of Biospecimens. | Beskow LM | — | 2016 | → |
| Unravelling the human genome-phenome relationship using phenome-wide association studies. | Bush WS et al. | — | 2016 | → |
| 'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research. | McCormack P et al. | — | 2016 | → |
| Challenges of web-based personal genomic data sharing. | Shabani M et al. | — | 2015 | → |
| Direct-to-consumer genomics on the scales of autonomy. | Vayena E | — | 2015 | → |
| Impact of Open Data Policies on Consent to Participate in Human Subjects Research: Discrepancies between Participant Action and Reported Concerns. | Cummings JA et al. | — | 2015 | → |
| Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review. | Shabani M et al. | — | 2014 | → |
| Consenting for current genetic research: is Canadian practice adequate? | Jaitovich Groisman I et al. | — | 2014 | → |
| Health research 2.0: The use in research of personal fitness or health data shared on social network raises both scientific and ethical concerns. | Weigmann K | — | 2014 | → |
| Personal genomics in Greece: an overview of available direct-to-consumer genomic services and the relevant legal framework. | Kechagia S et al. | — | 2014 | → |
| Proposed regulations for research with biospecimens: responses from stakeholders at CTSA consortium institutions. | Botkin JR et al. | — | 2014 | → |
| Adapting standards: ethical oversight of participant-led health research. | Vayena E et al. | — | 2013 | → |
| "Big data" versus "big brother": on the appropriate use of large-scale data collections in pediatrics. | Currie J | — | 2013 | → |
| Caught in the web: informed consent for online health research. | Vayena E et al. | — | 2013 | → |
| Evolving approaches to the ethical management of genomic data. | McEwen JE et al. | — | 2013 | → |
| Genetic incidental findings: autonomy regained? | Vayena E et al. | — | 2013 | → |
| How electronic clinical data can improve health technology assessment. | Treadwell JR et al. | — | 2013 | → |
| Many more reasons behind difficulties in recruiting patients to randomized controlled trials in psychiatry. | Adams CE | — | 2013 | → |
| Improving international research with clinical specimens: 5 achievable objectives. | LaBaer J | — | 2012 | → |