Public willingness to participate in and public opinions about genetic variation research: a review of the literature.
paper
Cited
Public
Unavailable
- Authors
- Sterling, Rene; Henderson, Gail E; Corbie-Smith, Giselle
- Year
- 2006
- Journal
- American journal of public health
- PMID
- 17018829
- DOI
- 10.2105/AJPH.2005.069286
- PMCID
- PMC1751820
Scientists are turning to genetic variation research in hopes of addressing persistent racial/ethnic disparities in health. Despite ongoing controversy, the advancement of genetic variation research is likely to produce new knowledge and technologies that will substantially change the ways in which we understand and value health. They also may affect the ways in which individuals and groups organize socially, politically, and economically. Addressing concerns that may exist in different communities is vital to the scientific and ethical advancement of genetic variation research. We review empirical studies of public willingness to participate in and opinions about genetic research with particular attention to differences in consent and opinion by racial/ethnic group membership.
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External
| Title | Authors | Journal | Year | Link |
|---|---|---|---|---|
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| Recruitment strategies and lessons learned from a large genetic study of African Americans. | Salowe RJ et al. | — | 2022 | → |
| The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage. | Lenartz A et al. | — | 2021 | → |
| Understanding Participation in Genetic Research Among Patients With Multiple Sclerosis: The Influences of Ethnicity, Gender, Education, and Age. | Cuccaro ML et al. | — | 2020 | → |
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| Patients with congenital heart defect and their families support genetic heart research. | Helm PC et al. | — | 2018 | → |
| Saliva samples as a source of DNA for high throughput genotyping: an acceptable and sufficient means in improvement of risk estimation throughout mammographic diagnostics. | Poehls UG et al. | — | 2018 | → |
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