Are racial and ethnic minorities less willing to participate in health research?

paper Cited Public

Authors: Wendler, David; Kington, Raynard; Madans, Jennifer; Van Wye, Gretchen; Christ-Schmidt, Heidi; Pratt, Laura A; Brawley, Otis W; Gross, Cary P; Emanuel, Ezekiel
Year: 2006
Journal: PLoS medicine
PMID: 16318411
DOI: 10.1371/journal.pmed.0030019
PMCID: PMC1298944

BACKGROUND: It is widely claimed that racial and ethnic minorities, especially in the US, are less willing than non-minority individuals to participate in health research. Yet, there is a paucity of empirical data to substantiate this claim. METHODS AND FINDINGS: We performed a comprehensive literature search to identify all published health research studies that report consent rates by race or ethnicity. We found 20 health research studies that reported consent rates by race or ethnicity. These 20 studies reported the enrollment decisions of over 70,000 individuals for a broad range of research, from interviews to drug treatment to surgical trials. Eighteen of the twenty studies were single-site studies conducted exclusively in the US or multi-site studies where the majority of sites (i.e., at least 2/3) were in the US. Of the remaining two studies, the Concorde study was conducted at 74 sites in the United Kingdom, Ireland, and France, while the Delta study was conducted at 152 sites in Europe and 23 sites in Australia and New Zealand. For the three interview or non-intervention studies, African-Americans had a nonsignificantly lower overall consent rate than non-Hispanic whites (82.2% versus 83.5%; odds ratio [OR] = 0.92; 95% confidence interval [CI] 0.84-1.02). For these same three studies, Hispanics had a nonsignificantly higher overall consent rate than non-Hispanic whites (86.1% versus 83.5%; OR = 1.37; 95% CI 0.94-1.98). For the ten clinical intervention studies, African-Americans' overall consent rate was nonsignificantly higher than that of non-Hispanic whites (45.3% versus 41.8%; OR = 1.06; 95% CI 0.78-1.45). For these same ten studies, Hispanics had a statistically significant higher overall consent rate than non-Hispanic whites (55.9% versus 41.8%; OR = 1.33; 95% CI 1.08-1.65). For the seven surgery trials, which report all minority groups together, minorities as a group had a nonsignificantly higher overall consent rate than non-Hispanic whites (65.8% versus 47.8%; OR = 1.26; 95% CI 0.89-1.77). Given the preponderance of US sites, the vast majority of these individuals from minority groups were African-Americans or Hispanics from the US. CONCLUSIONS: We found very small differences in the willingness of minorities, most of whom were African-Americans and Hispanics in the US, to participate in health research compared to non-Hispanic whites. These findings, based on the research enrollment decisions of over 70,000 individuals, the vast majority from the US, suggest that racial and ethnic minorities in the US are as willing as non-Hispanic whites to participate in health research. Hence, efforts to increase minority participation in health research should focus on ensuring access to health research for all groups, rather than changing minority attitudes.

#	Section	Preview
20	Results	For the three interview or non-intervention studies, African-Americans had a nonsignificantly lower…
21	Results	For the ten clinical intervention studies, African-Americans had a nonsignificantly higher overall…
22	Results	Table 3 reports the consent rates for the seven surgical intervention studies, which categorized all…
23	Results	Importantly, of the 20 studies identified, seven offered enrollment to very few minority…
24	Discussion	We identified 20 health research studies that reported the consent rates by race or ethnicity of…
25	Discussion	Our findings are striking given that they represent the enrollment decisions of over 70,000…
26	Discussion	Studies suggest that various factors, including historic abuses like the Tuskegee study, may have…
27	Discussion	Although we found only small differences in consent rates by race or ethnicity, we did find…
28	Discussion	African-Americans and Hispanics, than in non-Hispanic whites [36]. Recognizing that this rough…
29	Discussion	Looking at the number of individuals who participated, one might conclude that these studies support…
30	Discussion	We found a significant lack of homogeneity for all pooled statistics, with the exception of…
31	Discussion	The lack of homogeneity suggests that comparative willingness to enroll in specific studies cannot…
32	Discussion	Numerous writers have emphasized the need to increase minority participation in health research…
33	Discussion	This finding suggests that any underrepresentation of minority groups in health research, when it…
34	Discussion	Several limitations suggest the need for future research. First, the current findings are limited to…
35	Discussion	Third, we did not assess minority groups' attitudes toward health research. The current findings do…
36	Discussion	Fourth, our comprehensive search focused on clinical intervention trials, specifically phase I,…
37	Discussion	It is widely believed that racial and ethnic minorities are less willing to participate in health…

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Trial of Electronic Medical Record Integrated Next-Generation Sequencing Ordering in Veterans Affairs Cancer Care.	Stoeckle JH et al.	—	2024	→
Trial staff and community member perceptions of barriers and solutions to improving racial and ethnic diversity in clinical trial participation; a mixed method study.	Shields M et al.	—	2024	→
Whose Signals Are Being Amplified? Toward a More Equitable Clinical Psychophysiology.	Bradford DE et al.	—	2024	→
Why Did Our Trial Not Work Out? A Qualitative Analysis.	Heim E et al.	—	2024	→
A boot camp translation of Alzheimer's disease in Hispanic/Latino communities.	Medina LD et al.	—	2023	→
A Community-Based Approach to Longitudinal Language Research With Racially and Ethnically Minoritized Autistic Young Adults: Lessons Learned and New Directions.	Girolamo T et al.	—	2023	→
Addressing health inequalities in diabetes through research: Recommendations from Diabetes UK's 2022 health inequalities in diabetes workshop.	Chan J et al.	—	2023	→
Assessing Diversity in Newborn Genomic Sequencing Research Recruitment: Race/Ethnicity and Primary Spoken Language Variation in Eligibility, Enrollment, and Reasons for Declining.	Cakici JA et al.	—	2023	→
A Systematic Review of Patient Race, Ethnicity, Socioeconomic Status, and Educational Attainment in Prostate Cancer Treatment Randomised Trials-Is the Evidence Base Applicable to the General Patient Population?	Patki S et al.	—	2023	→
Centralizing prescreening data collection to inform data-driven approaches to clinical trial recruitment.	Kirn DR et al.	—	2023	→
Characterisation of medical conditions of children with sickle cell disease in the USA: findings from the 2007-2018 National Health Interview Survey (NHIS).	Gyamfi J et al.	—	2023	→
Clinical Trial Participation and COVID-19: a Descriptive Analysis from the American Heart Association's Get With The Guidelines Registry.	Shah KS et al.	—	2023	→
Community engagement and clinical trial diversity: Navigating barriers and co-designing solutions-A report from the "Health Equity through Diversity" seminar series.	Reopell L et al.	—	2023	→
Comparing the sociodemographic characteristics of participants and non-participants in the population-based Tromsø Study.	Vo CQ et al.	—	2023	→
Consent document translation expense hinders inclusive clinical trial enrolment.	Velez MA et al.	—	2023	→
Considerations for Embedding Inclusive Research Principles in the Design and Execution of Clinical Trials.	Peters U et al.	—	2023	→
Cultural Competence and the Postoperative Experience: Pain Control and Rehabilitation.	Yelton MJ et al.	—	2023	→
Current Status and Future Direction to Address Disparities in Diversity, Equity, and Inclusion in Prostate Cancer Care.	Fu J et al.	—	2023	→
Disparities in Huntington Disease Severity: Analysis Using the ENROLL-HD Dataset.	Mendizabal A et al.	—	2023	→
Effect of race/ethnicity on arterial recanalization following intravenous thrombolysis in acute ischemic stroke patients.	Fakih R et al.	—	2023	→
Enrollment of Racial and Ethnic Minoritized Groups in Gynecologic Oncology Clinical Trials: A Review of the Scope of the Problem, Contributing Factors, and Strategies to Improve Inclusion.	Barry D et al.	—	2023	→
Enrollment of underrepresented racial and ethnic groups in the Rare and Atypical Diabetes Network (RADIANT).	Tosur M et al.	—	2023	→
Equity, Diversity, and Inclusion in Radiation Oncology: A Bibliometric Analysis and Critical Review.	Franco P et al.	—	2023	→
Factors Influencing Community Participation in Internet Interventions Compared With Research Trials: Observational Study in a Nationally Representative Adult Cohort.	Batterham P et al.	—	2023	→
Impact of socioeconomics and race on clinical follow-up and trial enrollment and adherence in cerebral cavernous malformation.	Hage S et al.	—	2023	→
Impact of structural racism on inclusion and diversity in precision oncology: A scoping and critical review of the literature.	Geneviève LD et al.	—	2023	→
Implementation of Open Science Practices in Communication Sciences and Disorders Research With Black, Indigenous, and People of Color.	Girolamo T et al.	—	2023	→
Intersectionality in Alzheimer's Disease: The Role of Female Sex and Black American Race in the Development and Prevalence of Alzheimer's Disease.	Misiura MB et al.	—	2023	→
Leveraging African American family connectors for Alzheimer's disease genomic studies.	Byfield G et al.	—	2023	→
Mexican Americans agree to participate in longitudinal clinical research more than non-Hispanic whites.	Chen C et al.	—	2023	→
Mirror, Mirror on the Wall: Do Kidney RCT Populations Represent the People We Treat?	Gadegbeku CA	—	2023	→
Molnupiravir plus usual care versus usual care alone as early treatment for adults with COVID-19 at increased risk of adverse outcomes (PANORAMIC): an open-label, platform-adaptive randomised controlled trial.	Butler CC et al.	—	2023	→
Motives for and Barriers to Research Participation Among Racially and Ethnically Diverse Veterans.	Miller MB et al.	—	2023	→
Opportunities to Increase Science of Diversity and Inclusion in Clinical Trials: Equity and a Lack of a Control.	Igwe JK et al.	—	2023	→
Perceptions of psychedelic-assisted therapy among Black Americans.	Carter S et al.	—	2023	→
Perceptions of Research Participation among a Sample of Florida Residents Aged 50 and Over Reporting Dementia.	Milani SA et al.	—	2023	→
Qualitative study of Oncology Clinicians' Perceptions of Barriers to Offering Clinical Trials to Underserved Populations.	Perez GK et al.	—	2023	→
Racial and Ethnic Disparities in Parkinson Disease: A Call to Action.	Aamodt WW et al.	—	2023	→
Racial Differences in the Presentation and Progression of Huntington's Disease.	Buchanan DA et al.	—	2023	→
Recruitment of diverse community health center patients in a pragmatic weight gain prevention trial.	Miller HN et al.	—	2023	→
Research Silos in Cancer Disparities: Obstacles to Improving Clinical Outcomes for Underserved Patient Populations.	Richardson A et al.	—	2023	→
Rural Research Network to engage rural and minority community members in translational research.	McElfish PA et al.	—	2023	→
Sociodemographic disparities in ophthalmological clinical trials.	Nakayama LF et al.	—	2023	→
"There's not enough studies": Views of black breast and ovarian cancer patients on research participation.	Riggan KA et al.	—	2023	→
The Skin of Color Society's Meeting the Challenge Summit, 2022: Diversity in Dermatology Clinical Trials Proceedings.	Cobb CBC et al.	—	2023	→
The Stacked Community Engagement model: A practical model for developing community-engaged academic medical faculty.	Johnston B et al.	—	2023	→
Understanding organizational perspectives from clinical research stakeholders involved in recruitment for biopharmaceutical-sponsored clinical trials in the United States: Recommendations for organizational initiatives to improve access and inclusivity in clinical research.	Johnson RR et al.	—	2023	→
Use of Bland-Altman Analysis to Examine the Racial and Ethnic Representativeness of Study Populations in Community-Based Pediatric Health Research.	Krobath DM et al.	—	2023	→
Using a multicultural and multilingual awareness-raising strategy to enhance enrollment of racially underrepresented minoritized communities - the <i>PassITON</i> trial.	Bell J et al.	—	2023	→
When should global health actors prioritise more uncertain interventions?	Pierson L et al.	—	2023	→
Addressing racial and phenotypic bias in human neuroscience methods.	Webb EK et al.	—	2022	→
Allocation of Opportunities to Participate in Clinical Trials during the Covid-19 Pandemic and Other Public Health Emergencies.	Spector-Bagdady K et al.	—	2022	→
Behavioural approaches to recruitment and retention in clinical trials: a systematic mapping review.	Coffey T et al.	—	2022	→
Beliefs, Understanding, and Barriers Related to Dementia Research Participation Among Older African Americans.	Pugh E et al.	—	2022	→
Benefits of Participation in Clinical Trials: An Umbrella Review.	Bouzalmate-Hajjaj A et al.	—	2022	→
Burn model system national longitudinal database representativeness by race, ethnicity, gender, and age.	Wolfe AE et al.	—	2022	→
Cancer Epidemiology in Hispanic Populations: What Have We Learned and Where Do We Need to Make Progress?	Fejerman L et al.	—	2022	→
Communicating With Diverse Patients About Participating in a Biobank: A Randomized Multisite Study Comparing Electronic and Face-to-Face Informed Consent Processes.	Simon CM et al.	—	2022	→
Considerations for Increasing Racial, Ethnic, Gender, and Sexual Diversity in HIV Cure-Related Research with Analytical Treatment Interruptions: A Qualitative Inquiry.	Dubé K et al.	—	2022	→
Current state and need for more black surgeons in academic surgery.	King K et al.	—	2022	→
Current status of inclusion of black participants in neuropsychological studies: A scoping review and call to action.	Ray CGL et al.	—	2022	→
Development and pilot test of a physician-focused cancer clinical trials communication training intervention.	Eggly S et al.	—	2022	→
Disparities in Clinical Trial Participation: Multilevel Opportunities for Improvement.	Stewart BA et al.	—	2022	→
Diversity in Alzheimer's disease drug trials: The importance of eligibility criteria.	Franzen S et al.	—	2022	→
Does weight management research for adults with severe obesity represent them? Analysis of systematic review data.	Robertson C et al.	—	2022	→
Equitable Representation of Latinos in Clinical Research Is Needed to Achieve Health Equity in Cancer Care.	Ramirez AG et al.	—	2022	→
Ethnic differences between South Asians and White Caucasians in cardiovascular disease-related mortality in developed countries: a systematic literature review.	Patel M et al.	—	2022	→
Exploring ethnic representativeness in diabetes clinical trial enrolment from 2000 to 2020: a chronological survey.	Li G et al.	—	2022	→
Exploring the Motivational Drivers of Young Adults with Diabetes for Participation in Kidney Research.	Mohini P et al.	—	2022	→
Factors influencing the participation of Black and White Americans in Alzheimer's disease biomarker research.	Eliacin J et al.	—	2022	→
From bench to bedside: Pursuing equity in precision medicine approaches to pancreatic cancer care.	Herremans KM et al.	—	2022	→
From promise to practice: towards the realisation of AI-informed mental health care.	Koutsouleris N et al.	—	2022	→
Gender, Age, Racial and Ethnic Disparities in Clinical Trial Enrollment for Primary Liver Cancer.	Jan J et al.	—	2022	→
Global Investigative Site Personnel Diversity and Its Relationship with Study Participant Diversity.	Getz K et al.	—	2022	→
Hair me out: Highlighting systematic exclusion in psychophysiological methods and recommendations to increase inclusion.	Louis CC et al.	—	2022	→
Hispanic/Latino Perspectives on Hearing Loss and Hearing Healthcare: Focus Group Results.	Arnold ML et al.	—	2022	→
Improving African American women's engagement in clinical research: A systematic review of barriers to participation in clinical trials.	Le D et al.	—	2022	→
Improving Enrollment of Underrepresented Racial and Ethnic Populations in Heart Failure Trials: A Call to Action From the Heart Failure Collaboratory.	DeFilippis EM et al.	—	2022	→
Inclusive Clinical Trials for Disorders of Gut-Brain Interactions.	Wieland ML et al.	—	2022	→
Incorporating Dis/ability Studies and Critical Race Theory to combat systematic exclusion of Black, Indigenous, and People of Color in clinical neuroscience.	Girolamo T et al.	—	2022	→
Inequity in Peer Review in Communication Sciences and Disorders.	Girolamo TM et al.	—	2022	→
Interventions to increase racial and ethnic minority accrual into cancer clinical trials: A systematic review.	Nouvini R et al.	—	2022	→
Left behind: The potential impact of CFTR modulators on racial and ethnic disparities in cystic fibrosis.	McGarry ME et al.	—	2022	→
Mexican Americans Participate in Research More than Expected while non-Hispanic Whites Participate Less than Expected.	Gonzales XF et al.	—	2022	→
Missing Persons Alert: Finding the Lost "Person" in Patient-Oriented Research.	Rao S	—	2022	→
Recommendations for Diversifying Racial and Ethnic Representation in Autism Intervention Research: A Crossover Review of Recruitment and Retention Practices in Pediatric Mental Health.	Machalicek W et al.	—	2022	→
Recruitment of Older African Americans in Alzheimer's Disease Clinical Trials Using a Community Education Approach.	Shaw AR et al.	—	2022	→
Relationship Between Social Vulnerability Indicators and Trial Participant Attrition: Findings From the HYVALUE Trial.	Henderson KH et al.	—	2022	→
Representation of Racial and Ethnic Minority Populations in Dementia Prevention Trials: A Systematic Review.	Shaw AR et al.	—	2022	→
Representation of racial minorities in cardiac surgery randomized clinical trials.	Cancelli G et al.	—	2022	→
Role of Precision Oncology in Type II Endometrial and Prostate Cancers in the African Population: Global Cancer Genomics Disparities.	Marima R et al.	—	2022	→
Sharing research results with Latina breast cancer survivors who participated in a community-engaged behavioral RCT study: a descriptive cross-sectional survey study.	Bonilla J et al.	—	2022	→
The lived experience during the peri-diagnostic period of breast cancer: A scoping review.	Rogers CC et al.	—	2022	→
Twenty-year trends in racial and ethnic enrollment in large diabetes randomized controlled trials.	Zhang J et al.	—	2022	→
Understanding Openness to Involvement in Sexual Health Care Research: Narratives from a Sample of Black College Women in the United States.	Frederick H et al.	—	2022	→
Understanding Willingness to Participate in Cancer Clinical Trials Among Patients and Caregivers Attending a Minority-Serving Academic Cancer Center.	Ginossar T et al.	—	2022	→
Variation in Seeking Care for Cardiovascular Disease and Ambulance Utilization among Migrants in Australia: Time, Ethnicity, and Delay (TED) Study III.	Wechkunanukul KH et al.	—	2022	→
Addressing disparities in biologic drug development in the United States.	Hvisdas C et al.	—	2021	→
A systematic review and meta-analytic evaluation of psychosocial interventions in parents of children with cancer with an exploratory focus on minority outcomes.	Eche IJ et al.	—	2021	→
Biomedical Research COVID-19 Impact Assessment: Lessons Learned and Compelling Needs.	Cook NL et al.	—	2021	→
Characteristics of Clinical Trial Participants with Duchenne Muscular Dystrophy: Data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STAR<i>net</i>).	Mathews KD et al.	—	2021	→
Characterization of Underrepresented Populations in Modern Era Clinical Trials Involving Radiation Therapy.	Bero EH et al.	—	2021	→
Clinical trial participation assessed by age, sex, race, ethnicity, and socioeconomic status.	Saphner T et al.	—	2021	→
Community-Engaged Approaches for Minority Recruitment Into Clinical Research: A Scoping Review of the Literature.	Wieland ML et al.	—	2021	→
Demographic and Health Behavior Factors Associated With Clinical Trial Invitation and Participation in the United States.	Williams CP et al.	—	2021	→
Disparities by Race and Ethnicity Among Adults Recruited for a Preclinical Alzheimer Disease Trial.	Raman R et al.	—	2021	→
Disparities in phase 1 cancer clinical trial enrollment.	Perni S et al.	—	2021	→
Disparities in Research Participation by Level of Health Literacy.	Kripalani S et al.	—	2021	→
Diversity and bias in oral microbiome research: A commentary.	Nath S et al.	—	2021	→
Diversity and Inclusion in Pancreatic Cancer Clinical Trials.	Herremans KM et al.	—	2021	→
Diversity, Equity and Inclusion in Medicine: Why It Matters and How do We Achieve It?	Rosenkranz KM et al.	—	2021	→
Editing outside the body: Ex vivo gene-modification for β-hemoglobinopathy cellular therapy.	Rosanwo TO et al.	—	2021	→
Editorial: Racial and ethnic disparities in research and treatment of people with schizophrenia.	DeLisi LE et al.	—	2021	→
Enrollment, retention, and strategies for including disadvantaged populations in randomized controlled trials: a systematic review protocol.	LaPlante A et al.	—	2021	→
Ethnic minority and migrant underrepresentation in Covid-19 research: Causes and solutions.	Etti M et al.	—	2021	→
Facilitators, Challenges, and Messaging Strategies for Hispanic/Latino Populations Participating in Alzheimer's Disease and Related Dementias Clinical Research: A Literature Review.	Massett HA et al.	—	2021	→
Factors associated with parent views about participation in infant MRI research provide guidance for the design of the Healthy Brain and Child Development (HBCD) study.	Kohlasch KL et al.	—	2021	→
Health Literacy: The Common Denominator of Healthcare Progress.	Pitts PJ et al.	—	2021	→
Hispanic Male Recruitment into Obesity-Related Research: Evaluating Content Messaging Strategies, Experimental Findings, and Practical Implications.	Valdez LA et al.	—	2021	→
Last mile research: a conceptual map.	Davison CM et al.	—	2021	→
Parental Factors Associated With the Decision to Participate in a Neonatal Clinical Trial.	Weiss EM et al.	—	2021	→
Perceived Institutional Barriers Among Clinical and Research Professionals: Minority Participation in Oncology Clinical Trials.	Niranjan SJ et al.	—	2021	→
Pervasive structural racism in environmental epidemiology.	Perry MJ et al.	—	2021	→
Preferences for Updates on General Research Results: A Survey of Participants in Genomic Research from Two Institutions.	Taylor CO et al.	—	2021	→
Promoting Ethical Payment in Human Infection Challenge Studies.	Lynch HF et al.	—	2021	→
Racial and Ethnic Disparities in Primary Open-Angle Glaucoma Clinical Trials: A Systematic Review and Meta-analysis.	Allison K et al.	—	2021	→
Recognizing Laboratory Medicine's Collaborative Role in Identifying and Eliminating Health Disparities.	Wheeler SE et al.	—	2021	→
Recruitment characteristics and non-adherence associated factors of fibromyalgia patients in a randomized clinical trial: A retrospective survival analysis.	Cardenas-Rojas A et al.	—	2021	→
Red, Yellow, and Green Light Changes: Adaptations to Extension Health Promotion Programs.	Balis LE et al.	—	2021	→
Reporting of Demographic Variables in Neuropsychological Research: An Update of O'Bryant et al.'s Trends in the Current Literature.	Medina LD et al.	—	2021	→
Representation of Black patients in heart failure clinical trials.	Azam TU et al.	—	2021	→
Sex Differences in Willingness to Participate in Research Based on Study Risk Level Among a Community Sample of African Americans in North Central Florida.	Otufowora A et al.	—	2021	→
Sociodemographic diversity in cancer clinical trials: New findings on the effect of race and ethnicity.	Meyer S et al.	—	2021	→
Special Issue Editorial: Cultural Adaption of Psychological Interventions.	Heim E et al.	—	2021	→
Standardised Research Methods and Documentation in Cultural Adaptation: The Need, the Potential and Future Steps.	Heim E et al.	—	2021	→
Still ready to give up on life? A longitudinal phenomenological study into wishes to die among older adults.	van Wijngaarden E et al.	—	2021	→
"That's Only for Women": The Importance of Educating HIV-Positive Sexual Minority Men on HPV and High Resolution Anoscopy (HRA).	Finneran C et al.	—	2021	→
Undercutting efforts of precision medicine: roadblocks to minority representation in breast cancer clinical trials.	Saini G et al.	—	2021	→
"When Offered to Participate": A Systematic Review and Meta-Analysis of Patient Agreement to Participate in Cancer Clinical Trials.	Unger JM et al.	—	2021	→
Adult Cancer Survivors' Engagement and Interest in Patient-Centered Research.	Lubas MM et al.	—	2020	→
African American mothers' attitudes towards genetic testing in the InterGEN study.	Wright ML et al.	—	2020	→
Are ethnic and racial minority women less likely to participate in clinical trials?	Patel SN et al.	—	2020	→
'Becoming-with' a repeat healthy volunteer: Managing and negotiating trust among repeat healthy volunteers in commercial clinical drug trials.	Mwale S	—	2020	→
Brief culturally informed smartphone interventions decrease breast cancer symptom burden among Latina breast cancer survivors.	Yanez B et al.	—	2020	→
Characterizing Enrollment in Observational Studies of Duchenne Muscular Dystrophy by Race and Ethnicity.	Barnard AM et al.	—	2020	→
Clinical trials knowledge and attitudes of Vietnamese- and Anglo-Australian cancer patients: A cross-sectional study.	Smith AB et al.	—	2020	→
Demographic and Perioperative Factors Associated With Patient-reported Outcomes Measurement Information System (PROMIS) Survey Completion.	Parrish JM et al.	—	2020	→
Development of a Plain Language Decision Support Tool for Cancer Clinical Trials: Blending Health Literacy, Academic Research, and Minority Patient Perspectives.	Langford AT et al.	—	2020	→
Discordant attitudes and beliefs about cancer clinical trial participation between physicians, research staff, and cancer patients.	Hillyer GC et al.	—	2020	→
Diversity and inclusion for the All of Us research program: A scoping review.	Mapes BM et al.	—	2020	→
Efficacy and safety of immune checkpoint blockade in self-identified Black patients with advanced non-small cell lung cancer.	Nazha B et al.	—	2020	→
Exploring the Engagement of Racial and Ethnic Minorities in HIV Treatment and Vaccine Clinical Trials: A Scoping Review of Literature and Implications for Future Research.	Bass SB et al.	—	2020	→
Health Communication and Decision Making about Vaccine Clinical Trials during a Pandemic.	Langford AT	—	2020	→
Methods and Early Recruitment of a Community-Based Study of Cognitive Impairment Among Mexican Americans and Non-Hispanic Whites: The BASIC-Cognitive Study.	Briceño EM et al.	—	2020	→
My health smartphone intervention decreases daily fat sources among Latina breast cancer survivors.	Buscemi J et al.	—	2020	→
Opening doors to clinical trial participation among Hispanics: Lessons learned from the Spanish translation of ResearchMatch.	Byrne LM et al.	—	2020	→
Overcoming Barriers to Parkinson Disease Trial Participation: Increasing Diversity and Novel Designs for Recruitment and Retention.	Vaswani PA et al.	—	2020	→
Participant-Centered Strategies for Overcoming Barriers to Biospecimen Collection among Spanish-Speaking Latina Breast Cancer Survivors.	Samayoa C et al.	—	2020	→
Participant engagement in a community based participatory research study to reduce alcohol use among Latino immigrant men.	Torres VN et al.	—	2020	→
Racial and ethnic differences in older adults' willingness to be contacted about Alzheimer's disease research participation.	Salazar CR et al.	—	2020	→
Racial and Ethnic Disparities in Patient Experiences in the United States: 4-Year Content Analysis of Twitter.	Hswen Y et al.	—	2020	→
Strategies to Address Racial and Ethnic Disparities in Vision Care Research.	Liu AJ et al.	—	2020	→
Structural racism in precision medicine: leaving no one behind.	Geneviève LD et al.	—	2020	→
The Effectiveness of Community-based Outreach Events for the Promotion of African American Research Participation.	Bardach SH et al.	—	2020	→
The Impact of African Ancestry on Prostate Cancer Disparities in the Era of Precision Medicine.	Lewis DD et al.	—	2020	→
The management of diabetes in everyday life study: Design and methods for a pragmatic randomized controlled trial comparing the effectiveness of text messaging versus health coaching.	Bailey JE et al.	—	2020	→
Understanding Participation in Genetic Research Among Patients With Multiple Sclerosis: The Influences of Ethnicity, Gender, Education, and Age.	Cuccaro ML et al.	—	2020	→
Unpacking Trial Offers and Low Accrual Rates: A Qualitative Analysis of Clinic Visits With Physicians and Patients Potentially Eligible for a Prostate Cancer Clinical Trial.	Hamel LM et al.	—	2020	→
Willingness to Discuss Clinical Trials Among Black vs White Men With Prostate Cancer.	Senft N et al.	—	2020	→
A community-academic partnership to explore informational needs of African American women as a primer for cancer clinical trial recruitment.	Rivers DA et al.	—	2019	→
A comparison of neurocognition and functioning in first episode psychosis populations: do research samples reflect the real world?	Kline E et al.	—	2019	→
A CRISPR focus on attitudes and beliefs toward somatic genome editing from stakeholders within the sickle cell disease community.	Persaud A et al.	—	2019	→
Addressing Disparities in Alzheimer's Disease and African-American Participation in Research: An Asset-Based Community Development Approach.	Green-Harris G et al.	—	2019	→
A Review of African Americans' Beliefs and Attitudes About Genomic Studies: Opportunities for Message Design.	Scherr CL et al.	—	2019	→
Assessing research participant preferences for receiving study results.	Cook S et al.	—	2019	→
Bridging the Gap: Racial concordance as a strategy to increase African American participation in breast cancer research.	Frierson GM et al.	—	2019	→
Building the Network of Minority Health Research Investigators: A Novel Program to Enhance Leadership and Success of Underrepresented Minorities in Biomedical Research.	Blanchard SA et al.	—	2019	→
Community Perspectives: Developing and Implementing a Smartphone Intervention for Latina Breast Cancer Survivors in Chicago.	Oswald LB et al.	—	2019	→
Design and methodology of a cluster-randomized trial in early care and education centers to meet physical activity guidelines: Sustainability via Active Garden Education (SAGE).	Lee RE et al.	—	2019	→
Disparities in pediatric acute myeloid leukemia (AML) clinical trial enrollment.	Winestone LE et al.	—	2019	→
Engaging heart failure patients from a clinical data research network: A survey on willingness to participate in different types of research.	Choi YK et al.	—	2019	→
Enrollment and biospecimen collection in a multiethnic family cohort: the Northern California site of the Breast Cancer Family Registry.	John EM et al.	—	2019	→
Enrollment of Racial Minorities in Clinical Trials: Old Problem Assumes New Urgency in the Age of Immunotherapy.	Nazha B et al.	—	2019	→
Evaluation of a project to engage patients in the development of a patient-reported measure for HIV care (the I-Score Study).	Lessard D et al.	—	2019	→
Factors associated with participation by African Americans in a study of the genetics of glaucoma.	Parikh R et al.	—	2019	→
Factors associated with recruitment, surveillance participation, and retention in an observational study of pregnant women and influenza.	Thompson MG et al.	—	2019	→
How We Do Harm: Do Copyrighted Scales Benefit Research in the Developing World?	Manzar MD et al.	—	2019	→
Implications for GP endorsement of a diabetes app with patients from culturally diverse backgrounds: a qualitative study.	Ayre J et al.	—	2019	→
Increasing Diversity in Clinical Trials: Overcoming Critical Barriers.	Clark LT et al.	—	2019	→
International Society of Psychiatric Genetics Ethics Committee: Issues facing us.	Lázaro-Muñoz G et al.	—	2019	→
Lung Cancer Screening and Epigenetics in African Americans: The Role of the Socioecological Framework.	Watson KS et al.	—	2019	→
Motivations for Participation in Parkinson Disease Genetic Research Among Hispanics versus Non-Hispanics.	Nuytemans K et al.	—	2019	→
Overcoming Barriers to Clinical Trial Enrollment.	Nipp RD et al.	—	2019	→
Reasons for Exclusion from a Smoking Cessation Trial: An Analysis by Race/Ethnicity.	Webb Hooper M et al.	—	2019	→
Screening for Pregnancy Status in a Population-Based Sample: Characteristics Associated with Item Nonresponse.	Hughes SC et al.	—	2019	→
Sleep Patterns and Obesity: Hispanic Community Health Study/Study of Latinos Sueño Ancillar Study.	Loredo JS et al.	—	2019	→
The South Asian facial anthropometric profile: A systematic review.	Raveendran M	—	2019	→
Two Threats to Precision Medicine Equity.	Matthew DB	—	2019	→
Validation of the Spanish version of the MD Anderson symptom inventory - heart failure (MDASI-HF-Spanish) module.	Fadol A et al.	—	2019	→
Cancer Health Literacy and Willingness to Participate in Cancer Research and Donate Bio-Specimens.	Echeverri M et al.	—	2018	→
"Caught in a Generation Gap": A Generation Perspective on Refugees Getting Old in Denmark-A Qualitative Study.	Nielsen DS et al.	—	2018	→
Developing and Piloting a Community Scientist Academy to Engage Communities and Patients in Research.	Stewart MK et al.	—	2018	→
Dialogue: commentary on 'Engaging African-ancestry participants in systemic lupus erythematosus clinic trials'.	Ginzler EM	—	2018	→
Empowering Latina breast cancer patients to make informed decisions about clinical trials: a pilot study.	Chalela P et al.	—	2018	→
Engaging African ancestry participants in SLE clinical trials.	Anjorin A et al.	—	2018	→
Exercise in African American and White Colorectal Cancer Survivors: A Mixed Methods Approach.	Ray AD et al.	—	2018	→
Exploring disparities in receipt of adjuvant chemotherapy in culturally and linguistically diverse groups: an Australian centre's experience.	Thai AA et al.	—	2018	→
Exploring Factors Influencing Childhood Obesity Prevention Among Migrant Communities in Victoria, Australia: A Qualitative Study.	Renzaho AMN et al.	—	2018	→
Factors associated with reasons incontinent midlife women report for not seeking urinary incontinence treatment over 9 years across the menopausal transition.	Waetjen LE et al.	—	2018	→
Genes wide open: Data sharing and the social gradient of genomic privacy.	Haeusermann T et al.	—	2018	→
Health Research Participation, Opportunity, and Willingness Among Minority and Rural Communities of Arkansas.	McElfish PA et al.	—	2018	→
Improving -Omics-Based Research and Precision Health in Minority Populations: Recommendations for Nurse Scientists.	Taylor JY et al.	—	2018	→
Inclusion of special populations in clinical research: important considerations and guidelines.	Winter SS et al.	—	2018	→
Learning and Action in Community Health: Using the Health Belief Model to Assess and Educate African American Community Residents about Participation in Clinical Research.	Rollins L et al.	—	2018	→
Lower trial participation by culturally and linguistically diverse (CALD) cancer patients is largely due to language barriers.	Smith A' et al.	—	2018	→
Minority Veterans Are More Willing to Participate in Complex Studies Compared to Non-minorities.	Tamariz L et al.	—	2018	→
Participation and retention can be high in randomized controlled trials targeting underserved populations: a systematic review and meta-analysis.	Ojha RP et al.	—	2018	→
Post-GWAS in Psychiatric Genetics: A Developmental Perspective on the "Other" Next Steps.	Dick DM et al.	—	2018	→
Potential Dietary Supplement and Medication Interactions in a Subset of the Older Adult Population Attending Congregate Sites.	de Leon TV et al.	—	2018	→
Race-, Age-, and Gender-Based Characteristics and Toxicities of Targeted Therapies on Phase I Trials.	Owonikoko TK et al.	—	2018	→
Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services.	Zucchelli F et al.	—	2018	→
Recruitment and retention challenges and successes.	Aguirre TM et al.	—	2018	→
SMFM Special Report: Putting the "M" back in MFM: Reducing racial and ethnic disparities in maternal morbidity and mortality: A call to action.	Jain JA et al.	—	2018	→
Study partners: essential collaborators in discovering treatments for Alzheimer's disease.	Largent EA et al.	—	2018	→
Study protocol: rationale and design of the community-based prospective cohort study of kidney function and diabetes in rural New Mexico, the COMPASS study.	Jaros A et al.	—	2018	→
When Trust Is Not Enough: A Serial Mediation Model Explaining the Effect of Race Identity, eHealth Information Efficacy, and Information Behavior on Intention to Participate in Clinical Research.	Strekalova YA	—	2018	→
"Where Did This [PrEP] Come From?" African American Mother/Daughter Perceptions Related to Adolescent Preexposure Prophylaxis (PrEP) Utilization and Clinical Trial Participation.	Fletcher FE et al.	—	2018	→
Willingness to participate in weight-related research as reported by patients in PCORnet clinical data research networks.	Heerman WJ et al.	—	2018	→
Women's experiences of being invited to participate in a case-control study of stillbirth - findings from the Midlands and North of England Stillbirth Study.	Budd J et al.	—	2018	→
African Americans are less likely to enroll in preclinical Alzheimer's disease clinical trials.	Zhou Y et al.	—	2017	→
A Personal Touch: The Most Important Strategy for Recruiting Latino Research Participants.	García AA et al.	—	2017	→
Applying a Conceptual Framework to Maximize the Participation of Diverse Populations in Cancer Clinical Trials.	Napoles A et al.	—	2017	→
A Research Agenda for Communication Scholars in the Precision Medicine Era.	Scherr CL et al.	—	2017	→
Barriers and Motivators to Participating in mHealth Research Among African American Men.	James DCS et al.	—	2017	→
Challenges and opportunities in establishing a collaborative multisite observational study of chronic diseases and lifestyle factors among adults in Puerto Rico.	Mattei J et al.	—	2017	→
Cultural Competency Training to Increase Minority Enrollment into Radiation Therapy Clinical Trials-an NRG Oncology RTOG Study.	Wells JS et al.	—	2017	→
Dissecting and customising the Childhood Obesity Prevention Advisory Council (COPAC): the development and application of a community engagement framework to improve childhood obesity prevention among migrant populations.	Renzaho AMN	—	2017	→
Enhancing Biospecimen Knowledge Among Health Care Providers and Representatives From Community Organizations.	Tham HM et al.	—	2017	→
Factors affecting willingness to share electronic health data among California consumers.	Kim KK et al.	—	2017	→
Health disparities and clinical trial recruitment: Is there a duty to tweet?	Caplan A et al.	—	2017	→
How acceptable is it for HIV positive African, Caribbean and Black women to provide breast milk/fluid samples for research purposes?	Kapiriri L et al.	—	2017	→
Illustrating and analyzing the processes of multi-institutional collaboration: Lessons learnt at Howard University Hospital.	Malik M et al.	—	2017	→
Minority Representation in Migraine Treatment Trials.	Robbins NM et al.	—	2017	→
Partnering around cancer clinical trials (PACCT): study protocol for a randomized trial of a patient and physician communication intervention to increase minority accrual to prostate cancer clinical trials.	Eggly S et al.	—	2017	→
Predictors of Consent in a Randomized Field Study in Child Welfare.	McDonald T et al.	—	2017	→
Racial and Ethnic Disparities in Health and Health Care.	Wheeler SM et al.	—	2017	→
Recruitment of ethnic minorities for public health research: An interpretive synthesis of experiences from six interlinked Danish studies.	Nielsen AL et al.	—	2017	→
Research Professionals' Perspectives, Barriers, and Recommendations Regarding Minority Participation in Clinical Trials.	Kurt A et al.	—	2017	→
The Influence of Race and Ethnicity on Becoming a Human Subject: Factors Associated with Participation in Research.	Garza MA et al.	—	2017	→
The under-representation of minority ethnic groups in UK medical research.	Smart A et al.	—	2017	→
This isn't going to end well: Fictional representations of medical research in television and film.	Fisher JA et al.	—	2017	→
Understanding the Role of Message Frames on African-American Willingness to Participate in a Hypothetical Diabetes Prevention Study.	Langford AT et al.	—	2017	→
Urban-Dwelling Community Members' Views on Biomedical Research Engagement.	Cortés YI et al.	—	2017	→
Attitudes and motivations regarding willingness to participate in dental clinical trials.	Friesen LR et al.	—	2016	→
Barriers to Clinical Trial Enrollment in Racial and Ethnic Minority Patients With Cancer.	Hamel LM et al.	—	2016	→
Beliefs and Preferences for Medical Research Among African-Americans.	Cain GE et al.	—	2016	→
Brief Report: Recruitment and Retention of Minority Children for Autism Research.	Zamora I et al.	—	2016	→
Childhood cancer survivorship research in minority populations: A position paper from the Childhood Cancer Survivor Study.	Bhatia S et al.	—	2016	→
Community Willingness to Participate in a Dengue Study in Aceh Province, Indonesia.	Harapan H et al.	—	2016	→
Disparities in Gynecological Malignancies.	Chatterjee S et al.	—	2016	→
Diversity and representation: Key issues for psychophysiological science.	Gatzke-Kopp LM	—	2016	→
Eliciting parental support for the use of newborn blood spots for pediatric research.	Yeung EH et al.	—	2016	→
Enhancing the Ethical Conduct of HIV Research with Migrant Sex Workers: Human Rights, Policy, and Social Contextual Influences.	Goldenberg SM et al.	—	2016	→
Enrolling African-American and Latino patients with asthma in comparative effectiveness research: Lessons learned from 8 patient-centered studies.	Kramer CB et al.	—	2016	→
Examining Differences in Opportunity and Eligibility for Cancer Clinical Trial Participation Based on Sociodemographic and Disease Characteristics.	Rearden J et al.	—	2016	→
Focus on You: Cancer clinical trials perspectives.	Robinson BN et al.	—	2016	→
Minorities Are Underrepresented in Clinical Trials of Pharmaceutical Agents for Cystic Fibrosis.	McGarry ME et al.	—	2016	→
Naproxen Sodium for Pain Control With Intrauterine Device Insertion: A Randomized Controlled Trial.	Ngo LL et al.	—	2016	→
National Surveys and Tobacco Use Among African Americans: A Review of Critical Factors.	Rolle IV et al.	—	2016	→
Patient Navigation As a Model to Increase Participation of African Americans in Cancer Clinical Trials.	Fouad MN et al.	—	2016	→
POINT: Do Randomized Controlled Trials Ignore Needed Patient Populations? Yes.	Courtright K	—	2016	→
Racial and Ethnic Disparity in Major Depressive Disorder.	Shao Z et al.	—	2016	→
Recruiting and Assessing Recent Young Adult Latina Immigrants in Health Disparities Research.	Sheehan DM et al.	—	2016	→
Research participation registers can increase opportunities for patients and the public to participate in health services research.	Leach V et al.	—	2016	→
Seriously Injured Urban Black Men's Perceptions of Clinical Research Participation.	Bruce MM et al.	—	2016	→
Sociocultural variation in attitudes toward use of genetic information and participation in genetic research by race in the United States: implications for precision medicine.	Dye T et al.	—	2016	→
The Experience of Direct Outreach Recruitment in the National Children's Study.	Kaar JL et al.	—	2016	→
Using perceptual mapping methods to understand gender differences in perceived barriers and benefits of clinical research participation in urban minority HIV+ patients.	Bass SB et al.	—	2016	→
A comparative study of patients' attitudes toward clinical research in the United States and urban and rural China.	Wu E et al.	—	2015	→
Association of Race, Ethnicity and Language with Participation in Mental Health Research Among Adult Patients in Primary Care.	Chang TE et al.	—	2015	→
Barriers and facilitators to recruitment to a culturally-based dietary intervention among urban Hispanic breast cancer survivors.	Bernard-Davila B et al.	—	2015	→
Cancer Research Participation Beliefs and Behaviors of a Southern Black Population: A Quantitative Analysis of the Role of Structural Factors in Cancer Research Participation.	Farr DE et al.	—	2015	→
Challenges in Recruiting Aging Women Holocaust Survivors to a Case Control Study of Breast Cancer.	Vin-Raviv N et al.	—	2015	→
Characteristics of clinical trials that require participants to be fluent in English.	Egleston BL et al.	—	2015	→
Collaborative development of clinical trials education programs for African-American community-based organizations.	Blakeney N et al.	—	2015	→
Community Engagement in Health-Related Research: A Case Study of a Community-Linked Research Infrastructure, Jefferson County, Arkansas, 2011-2013.	Stewart MK et al.	—	2015	→
Critical Shortage of African American Medical Oncologists in the United States.	Hamel LM et al.	—	2015	→
Delivering a "dose of hope": a faith-based program to increase older african americans' participation in clinical trials.	Frew PM et al.	—	2015	→
Diversity in Clinical and Biomedical Research: A Promise Yet to Be Fulfilled.	Oh SS et al.	—	2015	→
Effectiveness of a community research registry to recruit minority and underserved adults for health research.	Bishop WP et al.	—	2015	→
Empowering Promotores de Salud as partners in cancer education and research in rural southwest Kansas.	Cupertino AP et al.	—	2015	→
Evaluating the Effectiveness of an Illustrated Permission/Assent Form.	Abdel-Rahman SM	—	2015	→
Five principles for effective cancer clinical trial education within the community setting.	Michaels M et al.	—	2015	→
Health-related quality of life of latin-american immigrants and spanish-born attended in spanish primary health care: socio-demographic and psychosocial factors.	Salinero-Fort MÁ et al.	—	2015	→
Impact of primary care provider knowledge, attitudes, and beliefs about cancer clinical trials: implications for referral, education and advocacy.	Michaels M et al.	—	2015	→
Outcomes from the Body & Soul Clinical Trials Project: a university-church partnership to improve African American enrollment in a clinical trial registry.	Langford AT et al.	—	2015	→
Overcoming barriers to recruiting ethnic minorities to mental health research: a typology of recruitment strategies.	Waheed W et al.	—	2015	→
Participation in Cancer Pharmacogenomic Studies: A Study of 8456 Patients Registered to Clinical Trials in the Cancer and Leukemia Group B (Alliance).	Dressler LG et al.	—	2015	→
Patient and physician factors associated with participation in cervical and uterine cancer trials: an NRG/GOG247 study.	Brooks SE et al.	—	2015	→
Promotoras as data collectors in a large study of physical activity in parks.	Marsh T et al.	—	2015	→
Racial and Ethnic Disparities in Research Studies: The Challenge of Creating More Diverse Cohorts.	Konkel L	—	2015	→
Strategies for enrollment of African Americans into cancer genetic studies.	Ewing A et al.	—	2015	→
Strategies to Build Trust and Recruit African American and Latino Community Residents for Health Research: A Cohort Study.	Sankaré IC et al.	—	2015	→
Survey nonresponse among ethnic minorities in a national health survey--a mixed-method study of participation, barriers, and potentials.	Ahlmark N et al.	—	2015	→
To Share or Not to Share? A Survey of Biomedical Researchers in the U.S. Southwest, an Ethnically Diverse Region.	Oushy MH et al.	—	2015	→
Willingness to Participate in Cardiovascular Clinical Research among African-Americans.	Stuchlik P et al.	—	2015	→
Yoga Research and Spirituality: A Case Study Discussion.	Middleton KR et al.	—	2015	→
ACT2 peer-driven intervention increases enrollment into HIV/AIDS medical studies among African Americans/Blacks and Hispanics: A cluster randomized controlled trial.	Gwadz M et al.	—	2014	→
African American women's perceptions and attitudes regarding participation in medical research: the Mayo Clinic/The Links, Incorporated partnership.	Brewer LC et al.	—	2014	→
A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders.	George S et al.	—	2014	→
Clinical effectiveness of CRT and ICD therapy in heart failure patients by racial/ethnic classification: insights from the IMPROVE HF registry.	Ziaeian B et al.	—	2014	→
Comparison of a French pediatric type 1 diabetes cohort's responders and non-responders to an environmental questionnaire.	Le Fur S et al.	—	2014	→
Discussing race-related limitations of genomic testing for colon cancer risk: implications for education and counseling.	Butrick MN et al.	—	2014	→
Efficacy and tolerability of celecoxib and naproxen versus placebo in Hispanic patients with knee osteoarthritis.	Essex MN et al.	—	2014	→
Experiences of and attitudes toward injecting drug use among marginalized African migrant and refugee youth in Melbourne, Australia.	Horyniak D et al.	—	2014	→
Factors Associated with African-American Women's Decisions to Participate in Genetic Research.	Still CH et al.	—	2014	→
Factors influencing recruitment to research: qualitative study of the experiences and perceptions of research teams.	Newington L et al.	—	2014	→
Feasibility and acceptability of targeted screening for congenital CMV-related hearing loss.	Williams EJ et al.	—	2014	→
"I did it for us and I would do it again": perspectives of rural latinos on providing biospecimens for research.	Hohl SD et al.	—	2014	→
Improving diversity in cancer research trials: the story of the Cancer Disparities Research Network.	Simon MA et al.	—	2014	→
Increasing primary care physician support for and promotion of cancer clinical trials.	Robinson MK et al.	—	2014	→
Latino beliefs about biomedical research participation: a qualitative study on the U.S.-Mexico border.	Ceballos RM et al.	—	2014	→
Minorities remain underrepresented in HIV/AIDS research despite access to clinical trials.	Castillo-Mancilla JR et al.	—	2014	→
Physicians should declare financial incentives for recruiting minority ethnic patients into clinical trials.	Mainous AG	—	2014	→
Promoting Factors and Barriers to Participation in Early Phase Clinical Trials: Patients Perspectives.	Chalela P et al.	—	2014	→
Racial/ethnic differences in clinical trial enrollment, refusal rates, ineligibility, and reasons for decline among patients at sites in the National Cancer Institute's Community Cancer Centers Program.	Langford AT et al.	—	2014	→
Racial/ethnic differences in trust in health care: HIV conspiracy beliefs and vaccine research participation.	Westergaard RP et al.	—	2014	→
Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups.	Bonevski B et al.	—	2014	→
Recruitment for health disparities preventive intervention trials: the early childhood caries collaborating centers.	Tiwari T et al.	—	2014	→
Research participant-centered outcomes at NIH-supported clinical research centers.	Kost RG et al.	—	2014	→
Twenty years post-NIH Revitalization Act: enhancing minority participation in clinical trials (EMPaCT): laying the groundwork for improving minority clinical trial accrual: renewing the case for enhancing minority participation in cancer clinical trials.	Chen MS et al.	—	2014	→
African American participation in health-related research studies: indicators for effective recruitment.	Lang R et al.	—	2013	→
Are survivorship care plans responsive to African-American breast cancer survivors?: voices of survivors and advocates.	Ashing-Giwa K et al.	—	2013	→
Building trust for engagement of minorities in human subjects research: is the glass half full, half empty, or the wrong size?	Quinn SC et al.	—	2013	→
Clinical trial participation among ethnic/racial minority and majority patients with advanced cancer: what factors most influence enrollment?	Jimenez R et al.	—	2013	→
Coaching intervention as a strategy for minority recruitment to cancer clinical trials.	Fracasso PM et al.	—	2013	→
Community needs, concerns, and perceptions about health research: findings from the clinical and translational science award sentinel network.	Cottler LB et al.	—	2013	→
Connecting communities to health research: development of the Project CONNECT minority research registry.	Green MA et al.	—	2013	→
Cultivating a cycle of trust with diverse communities in practice-based research: a report from PRIME Net.	Getrich CM et al.	—	2013	→
Culture matters as well.	Surbone A et al.	—	2013	→
Does consent bias research?	Rothstein MA et al.	—	2013	→
Enrollment in YFV Vaccine Trial: An Evaluation of Recruitment Outcomes Associated with a Randomized Controlled Double-Blind Trial of a Live Attenuated Yellow Fever Vaccine.	Frew PM et al.	—	2013	→
Examining the challenges of family recruitment to behavioral intervention trials: factors associated with participation and enrollment in a multi-state colonoscopy intervention trial.	Simmons RG et al.	—	2013	→
Internet-based, culturally sensitive, problem-solving therapy for Turkish migrants with depression: randomized controlled trial.	Ünlü Ince B et al.	—	2013	→
Participants' perspectives on safety monitoring in clinical trials.	Flynn KE et al.	—	2013	→
Participation in research involving novel sampling and study designs to identify acute HIV-1 infection among minority men who have sex with men.	Rodriguez K et al.	—	2013	→
Perceptions regarding genetic testing in populations at risk for nephropathy.	Freedman BI et al.	—	2013	→
Pilot intervention outcomes of an educational program for biospecimen research participation.	Kiviniemi MT et al.	—	2013	→
Public participation in, and awareness about, medical research opportunities in the era of clinical and translational research.	Davis MM et al.	—	2013	→
ResearchTracking: Monitoring gender and ethnic minority recruitment and retention in cancer symptom studies.	Huang HY et al.	—	2013	→
Rethinking the vulnerability of minority populations in research.	Rogers W et al.	—	2013	→
Strategies for Recruitment and Retention of Families from Low-Income, Ethnic Minority Backgrounds in a Longitudinal Study of Caregiver Feeding and Child Weight.	Brannon EE et al.	—	2013	→
The design and conduct of a community-based registry and biorepository: a focus on cardiometabolic health in Latinos.	Shaibi GQ et al.	—	2013	→
The Experience of Screening for HIV/AIDS Medical Studies among African-American/Black and Latino/Hispanic Persons Living with HIV/AIDS: A Mixed-Methods Exploration.	Engel S et al.	—	2013	→
The organization of the health care provider's practice influenced patient participation in research: a multilevel analysis.	Rigal L et al.	—	2013	→
Under-representation of minority ethnic groups in cardiovascular research: a semi-structured interview study.	Gill PS et al.	—	2013	→
Under-representation of minority ethnic groups in research--call for action.	Redwood S et al.	—	2013	→
United states acculturation and cancer patients' end-of-life care.	Wright AA et al.	—	2013	→
Using animation as an information tool to advance health research literacy among minority participants.	George S et al.	—	2013	→
Analysing family service needs of typically underserved families in the USA.	Samuel PS et al.	—	2012	→
A pilot program in collaboration with African American churches successfully increases awareness of the importance of cancer research and participation in cancer translational research studies among African Americans.	Colon-Otero G et al.	—	2012	→
A randomized trial to assess the effect of a research informational pamphlet on telephone survey completion rates among older Latinos.	Santoyo-Olsson J et al.	—	2012	→
Are patients with longer emergency department wait times less likely to consent to research?	Limkakeng AT et al.	—	2012	→
Assessing the awareness of and willingness to participate in cancer clinical trials among immigrant Latinos.	Wallington SF et al.	—	2012	→
A study of racial/ethnic differences in treatment preferences among lupus patients.	Vina ER et al.	—	2012	→
Attributes of researchers and their strategies to recruit minority populations: results of a national survey.	Quinn SC et al.	—	2012	→
Bangladeshi immigrants in New York City: a community based health needs assessment of a hard to reach population.	Patel VV et al.	—	2012	→
Barriers and facilitators for utilization of genetic counseling and risk assessment services in young female breast cancer survivors.	Anderson B et al.	—	2012	→
Challenges and opportunities in pain management disparities research: implications for clinical practice, advocacy, and policy.	Campbell LC et al.	—	2012	→
Differences in recruitment and early retention among ethnic minority participants in a large pediatric cohort: the TEDDY Study.	Baxter J et al.	—	2012	→
Ethics corner--inequality and injustice for some.	Michalek AM et al.	—	2012	→
Factors influencing enrollment of African Americans in the Look AHEAD trial.	Mount DL et al.	—	2012	→
Health disparities and the criminal justice system: an agenda for further research and action.	Binswanger IA et al.	—	2012	→
Is there a legacy of the U.S. Public Health Syphilis Study at Tuskegee in HIV/AIDS-related beliefs among heterosexual African-Americans and Latinos?	Mays VM et al.	—	2012	→
Minority inclusion in randomized clinical trials of panic disorder.	Mendoza DB et al.	—	2012	→
Minority participation in a school-based randomized clinical trial of tooth decay prevention in the United States.	Nelson S et al.	—	2012	→
Nonparticipation in a population-based trial to increase colorectal cancer screening.	Green BB et al.	—	2012	→
Nurse Practitioners' attitudes about cancer clinical trials and willingness to recommend research participation.	Ulrich CM et al.	—	2012	→
Recruitment and retention strategies of African American and Latina American breast cancer survivors in a longitudinal psycho-oncology study.	Ashing-Giwa K et al.	—	2012	→
Recruitment, asthma characteristics, and medication behaviors in Midwestern Puerto Rican youth: data from Project CURA.	Martin MA et al.	—	2012	→
Recruitment practices and the politics of inclusion in cancer clinical trials.	Joseph G et al.	—	2012	→
Response to nonsteroidal anti-inflammatory drugs in African Americans with osteoarthritis of the knee.	Essex MN et al.	—	2012	→
Socioeconomic determinants associated with willingness to participate in medical research among a diverse population.	Svensson K et al.	—	2012	→
Successful recruitment and retention of Latino study participants.	Reidy MC et al.	—	2012	→
"The promise of community-based advocacy and education efforts for increasing cancer clinical trials accrual".	Michaels M et al.	—	2012	→
A New Mechanism for Tracking Publicly Available Study Volunteer Demographics.	Zuckerman R et al.	—	2011	→
Challenges in recruiting South Asians into prevention trials: health professional and community recruiters' perceptions on the PODOSA trial.	Samsudeen BS et al.	—	2011	→
Challenging assumptions about minority participation in US clinical research.	Fisher JA et al.	—	2011	→
Cognitive dysfunction in patients with systemic lupus erythematosus: a controlled study.	Antonchak MA et al.	—	2011	→
Community engagement and the resource centers for minority aging research.	Sood JR et al.	—	2011	→
Community events as viable sites for recruiting minority volunteers who agree to be contacted for future research.	Bishop WP et al.	—	2011	→
Competing for patients: an ethical framework for recruiting patients with brain tumors into clinical trials.	Ibrahim GM et al.	—	2011	→
Enrollment of women and minorities in NINDS trials.	Burke JF et al.	—	2011	→
Exploring decision-making of HIV-infected Hispanics and African Americans participating in clinical trials.	Rivera-Goba MV et al.	—	2011	→
Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies.	Nightingale CL et al.	—	2011	→
Inclusion and exclusion in nutrigenetics clinical research: ethical and scientific challenges.	Hurlimann T et al.	—	2011	→
Inclusion of African Americans in genetic studies: what is the barrier?	Hartz SM et al.	—	2011	→
Increasing accrual in cancer clinical trials with a focus on minority enrollment: The William Beaumont Hospital Community Clinical Oncology Program Experience.	Vicini F et al.	—	2011	→
Introduction to the science of recruitment and retention among ethnically diverse populations.	Dilworth-Anderson P	—	2011	→
Lessons learned from community-based minority health care serving system participation in an NIH clinical trial.	Ezeugwu CO et al.	—	2011	→
Preconsent education about research processes improved African Americans' willingness to participate in clinical research.	Dunlop AL et al.	—	2011	→
Predictors of 4-year retention among African American and white community-dwelling participants in the UAB study of aging.	Allman RM et al.	—	2011	→
Prevalence of heart failure and atrial fibrillation in minority ethnic subjects: the Ethnic-Echocardiographic Heart of England Screening Study (E-ECHOES).	Gill PS et al.	—	2011	→
Promoting recruitment of minority ethnic groups into research: qualitative study exploring the views of South Asian people with asthma.	Rooney LK et al.	—	2011	→
Racial-ethnic disparities in stroke care: the American experience: a statement for healthcare professionals from the American Heart Association/American Stroke Association.	Cruz-Flores S et al.	—	2011	→
Recommendations for enhancing clinical trials education: a review of the literature.	Stepan KA et al.	—	2011	→
Recruiting Latino and non-Latino families in pediatric research: considerations from a study on childhood disability.	Kao B et al.	—	2011	→
Recruitment and retention strategies for minority or poor clinical research participants: lessons from the Healthy Aging in Neighborhoods of Diversity across the Life Span study.	Ejiogu N et al.	—	2011	→
Recruitment of Chinese American elders into dementia research: the UCSF ADRC experience.	Chao SZ et al.	—	2011	→
Recruitment of HIV/AIDS treatment-naïve patients to clinical trials in the highly active antiretroviral therapy era: influence of gender, sexual orientation and race.	Menezes P et al.	—	2011	→
Recruitment of Mexican American adults for an intensive diabetes intervention trial.	Martin MA et al.	—	2011	→
Recruitment of South Asians into asthma research: qualitative study of UK and US researchers.	Stirland L et al.	—	2011	→
Recruitment strategies and costs associated with community-based research in a Mexican-origin population.	Mendez-Luck CA et al.	—	2011	→
Research ethics I: Responsible conduct of research (RCR)--historical and contemporary issues pertaining to human and animal experimentation.	Horner J et al.	—	2011	→
Researching mental health in minority ethnic communities: reflections on recruitment.	Rugkåsa J et al.	—	2011	→
Strengthening the public research agenda for social determinants of health.	Boyce CA et al.	—	2011	→
The effect of peer-driven intervention on rates of screening for AIDS clinical trials among African Americans and Hispanics.	Gwadz MV et al.	—	2011	→
The generalizability of a participant registry for minority health research.	Lichtenberg PA	—	2011	→
Training community health workers about cancer clinical trials.	Schapira L et al.	—	2011	→
Willingness to participate in clinical trials among African Americans and whites previously exposed to clinical research.	Durant RW et al.	—	2011	→
Work/life balance and health: the Nurses and Midwives e-cohort Study.	Schluter PJ et al.	—	2011	→
An exploratory behavioral intervention trial to improve rates of screening for AIDS clinical trials among racial/ethnic minority and female persons living with HIV/AIDS.	Gwadz MV et al.	—	2010	→
A qualitative assessment of implementing a cross-cultural survey on cancer wards in Denmark--a description of barriers.	Kristiansen M et al.	—	2010	→
Asian women are less likely to express interest in infertility research.	Johnstone E et al.	—	2010	→
Beliefs about participating in research among a sample of minority persons living with HIV/AIDS in New York City.	Floyd T et al.	—	2010	→
Biospecimen repositories: are blood donors willing to participate?	Scott EA et al.	—	2010	→
Challenges and opportunities: recruitment and retention of African Americans for Alzheimer disease research: lessons learned.	Ballard EL et al.	—	2010	→
Clinical trial awareness among racial/ethnic minorities in HINTS 2007: sociodemographic, attitudinal, and knowledge correlates.	Langford A et al.	—	2010	→
Community health workers' support for cancer clinical trials: description and explanation.	Schutt RK et al.	—	2010	→
Comparative efficacy versus effectiveness of initial antiretroviral therapy in clinical trials versus routine care.	Routman JS et al.	—	2010	→
Culturally adapted pharmacotherapy and the integrative formulation.	Malik M et al.	—	2010	→
Do hospitals provide lower quality of care to black patients for pneumonia?	Mayr FB et al.	—	2010	→
Erasing barriers to minority participation in cancer research.	Grann VR	—	2010	→
Ethnic Identity predicts loss-to-follow-up in a health promotion trial.	Langford AT et al.	—	2010	→
Genetic repositories for the study of major psychiatric conditions: what do we know about ethnic minorities' genetic vulnerability?	Oquendo MA et al.	—	2010	→
Genetic research in the blood bank: acceptability to Northern California donors.	Rice MS et al.	—	2010	→
Geographic proximity and racial disparities in cancer clinical trial participation.	Kanarek NF et al.	—	2010	→
Healthy aging in neighborhoods of diversity across the life span (HANDLS): overcoming barriers to implementing a longitudinal, epidemiologic, urban study of health, race, and socioeconomic status.	Evans MK et al.	—	2010	→
Importance of capacity assessment for an early staged-research network designed to eliminate health disparity: lessons from RTRN.	Lee JE et al.	—	2010	→
Increasing and supporting the participation of persons of color living with HIV/AIDS in AIDS clinical trials.	Gwadz MV et al.	—	2010	→
NIA outreach to minority and health disparity populations can a toolbox for recruitment and retention be far behind?	Harden JT et al.	—	2010	→
Preventing gestational diabetes mellitus among migrant women and reducing obesity and type 2 diabetes in their offspring: a call for culturally competent lifestyle interventions in pregnancy.	Renzaho AM et al.	—	2010	→
Racial and ethnic disparities in assisted reproductive technology outcomes in the United States.	Fujimoto VY et al.	—	2010	→
Racial preferences for participation in a depression prevention trial involving problem-solving therapy.	Kasckow J et al.	—	2010	→
Recruitment and retention of women for clinical leiomyoma trials.	McCarthy-Keith D et al.	—	2010	→
Recruitment and retention of women in a large randomized control trial to reduce repeat preterm births: the Philadelphia Collaborative Preterm Prevention Project.	Webb DA et al.	—	2010	→
Recruitment for an internet-based diabetes self-management program: scientific and ethical implications.	Glasgow RE et al.	—	2010	→
Strategies for Recruitment of Healthy Premenopausal Women into the African American Nutrition for Life (A NULIFE) Study.	King DW et al.	—	2010	→
The likelihood of participation in clinical trials can be measured: the Clinical Research Involvement Scales.	Frew PM et al.	—	2010	→
Translation of questionnaire increases the response rate in immigrants: filling the language gap or feeling of inclusion?	Moradi T et al.	—	2010	→
Variability in frontotemporal brain structure: the importance of recruitment of African Americans in neuroscience research.	Isamah N et al.	—	2010	→
A descriptive analysis of state legislation and policy addressing clinical trials participation.	Baquet CR et al.	—	2009	→
A geospatial analysis of persons opting out of an exception from informed consent out-of-hospital clinical trial.	Nelson MJ et al.	—	2009	→
An exploration of attitudes among black Americans towards psychiatric genetic research.	Murphy E et al.	—	2009	→
Beliefs of women's risk as research subjects: a four-city study examining differences by sex and by race/ethnicity.	Russell SL et al.	—	2009	→
EDICT policy recommendations support protection of research participants.	Jones WK	—	2009	→
Engaging members of African American and Latino communities in preventive HIV vaccine trials.	Sobieszczyk ME et al.	—	2009	→
Exploring the "legacy" of the Tuskegee Syphilis Study: a follow-up study from the Tuskegee Legacy Project.	Katz RV et al.	—	2009	→
Facilitating the recruitment of minority ethnic people into research: qualitative case study of South Asians and asthma.	Sheikh A et al.	—	2009	→
Going the distance: overcoming challenges in recruitment and retention of Black and White women in multisite, longitudinal study of predictors of coronary heart disease.	McSweeney JC et al.	—	2009	→
Heart failure in Hispanics.	Vivo RP et al.	—	2009	→
Identifying the Tuskegee Syphilis Study: implications of results from recall and recognition questions.	Katz RV et al.	—	2009	→
Is the enrollment of racial and ethnic minorities in research in the emergency setting equitable?	Sugarman J et al.	—	2009	→
Major depressive disorder in the African American population: meeting the challenges of stigma, misdiagnosis, and treatment disparities.	Bailey RK et al.	—	2009	→
Minority enrollment in Parkinson's disease clinical trials.	Schneider MG et al.	—	2009	→
Prevalence of narcolepsy in King County, Washington, USA.	Longstreth WT et al.	—	2009	→
Racial and ethnic differences in willingness to participate in psychiatric genetic research.	Murphy EJ et al.	—	2009	→
Reasons for enrollment, the informed consent process, and trust among low-income women participating in a community-based participatory research study.	Kneipp SM et al.	—	2009	→
Recruiting minorities where they receive care: Institutional barriers to cancer clinical trials recruitment in a safety-net hospital.	Joseph G et al.	—	2009	→
Recruiting Urban Latina Adolescents and Their Families: Challenges and Lessons Learned in Suicide Attempts Research.	Zayas LH et al.	—	2009	→
Role of ethnicity in the expression of features of hot flashes.	Simpkins JW et al.	—	2009	→
Surrogate consent for dementia research: a national survey of older Americans.	Kim SY et al.	—	2009	→
Systematic reviews reveal unrepresentative evidence for the development of drug formularies for poor and nonwhite populations.	Odierna DH et al.	—	2009	→
The case for Eliminating Disparities in Clinical Trials.	Goldberg D	—	2009	→
The solvable problem of racial under-representation in Parkinson's disease clinical trials.	Ridgway D	—	2009	→
Under-representation of women and ethnic minorities in vascular surgery randomized controlled trials.	Hoel AW et al.	—	2009	→
Veterans' attitudes regarding a database for genomic research.	Kaufman D et al.	—	2009	→
Willingness of gynecologic cancer patients to participate in clinical trials.	Mathews C et al.	—	2009	→
A comparison of methods and results in recruiting white and black women into reproductive studies: the MMC-PSU cooperative center on reproduction experience.	Sweet S et al.	—	2008	→
A thematic analysis of factors influencing recruitment to maternal and perinatal trials.	Tooher RL et al.	—	2008	→
Born in Bradford, a cohort study of babies born in Bradford, and their parents: protocol for the recruitment phase.	Raynor P et al.	—	2008	→
Challenges in enrollment of minority, pediatric, and geriatric patients in emergency and acute care clinical research.	Glickman SW et al.	—	2008	→
Decisions to participate in research: views of underserved minority drug users with or at risk for HIV.	Slomka J et al.	—	2008	→
Factors associated with enrollment of African Americans into a clinical trial: results from the African American study of kidney disease and hypertension.	Gadegbeku CA et al.	—	2008	→
Factors influencing physician referrals of patients to clinical trials.	Mainous AG et al.	—	2008	→
Human embryonic stem cell research, justice, and the problem of unequal biological access.	Moller MS	—	2008	→
Proband race/ethnicity affects pedigree completion rate in a genetic study of ischemic stroke.	Kissela BM et al.	—	2008	→
Race, medical researcher distrust, perceived harm, and willingness to participate in cardiovascular prevention trials.	Braunstein JB et al.	—	2008	→
Rhode Islanders' attitudes towards the development of a statewide genetic biobank.	Goldman RE et al.	—	2008	→
The project IMPACT experience to date: increasing minority participation and awareness of clinical trials.	Powell JH et al.	—	2008	→
Timing is everything: methodologic issues locating and recruiting medically underserved women for abnormal mammography follow-up research.	Fair AM et al.	—	2008	→
Addressing tobacco-related health disparities.	Moolchan ET et al.	—	2007	→
An examination of community members', researchers' and health professionals' perceptions of barriers to minority participation in medical research: an application of concept mapping.	Robinson JM et al.	—	2007	→
Challenges to participation in paediatric palliative care research: a review of the literature.	Tomlinson D et al.	—	2007	→
Commentary on "increasing minority participation in clinical research": a white paper from the endocrine society.	Alexander-Bridges M et al.	—	2007	→
Community engagement in epidemiological research.	Sapienza JN et al.	—	2007	→
Consent for long-term storage of blood samples by Indigenous Australian research participants: the DRUID Study experience.	Cunningham J et al.	—	2007	→
Ethnicity and cardiovascular disease prevention in the United Kingdom: a practical approach to management.	Lip GY et al.	—	2007	→
HIV-infected African Americans are willing to participate in HIV treatment trials.	Garber M et al.	—	2007	→
Parental narratives on genetic testing for children with hearing loss: a qualitative inquiry.	Steinberg AG et al.	—	2007	→
Personalismo and breaking barriers: accessing Hispanic populations for clinical services and research.	Evans BC et al.	—	2007	→
Promoting HIV Vaccine Research in African American Communities: Does the Theory of Reasoned Action Explain Potential Outcomes of Involvement?	Frew PM et al.	—	2007	→
Provider roles in the recruitment of underrepresented populations to cancer clinical trials.	Howerton MW et al.	—	2007	→
Recruiting low-income healthy women to research: an exploratory study.	Joseph G et al.	—	2007	→
Recruiting vulnerable populations into research: a systematic review of recruitment interventions.	UyBico SJ et al.	—	2007	→
Recruitment and retention of low-income minority women in a behavioral intervention to reduce smoking, depression, and intimate partner violence during pregnancy.	El-Khorazaty MN et al.	—	2007	→
The impact of HIPAA authorization on willingness to participate in clinical research.	Dunlop AL et al.	—	2007	→
Willingness of minorities to participate in biomedical studies: confirmatory findings from a follow-up study using the Tuskegee Legacy Project Questionnaire.	Katz RV et al.	—	2007	→
African Americans and participation in clinical trials: differences in beliefs and attitudes by gender.	BeLue R et al.	—	2006	→
Awareness and knowledge of the U.S. Public Health Service syphilis study at Tuskegee: implications for biomedical research.	McCallum JM et al.	—	2006	→
BiDil: from another vantage point.	Puckrein G	—	2006	→
Clinical trials in pediatric traumatic brain injury: unique challenges and potential responses.	Natale JE et al.	—	2006	→
Considerations on the use of the internet as a tool for minority recruitment into clinical trials.	Freeman HP	—	2006	→
Demographic characteristics of participants in studies of risk factors, prevention, and treatment of postpartum depression.	Ross LE et al.	—	2006	→
Does random treatment assignment cause harm to research participants?	Gross CP et al.	—	2006	→
Ethnic disparities in health: the public's role in working for equality.	Satcher D	—	2006	→
Lessons learned in participant recruitment and retention: the EXCITE trial.	Blanton S et al.	—	2006	→
Mistrust among minorities and the trustworthiness of medicine.	Wynia MK et al.	—	2006	→
Patients' views on financial conflicts of interest in cancer research trials.	Hampson LA et al.	—	2006	→
Promoting equality and diversity in UK biomedical and clinical research.	Mehta P	—	2006	→
Reducing disparities in the burden of cancer: the role of patient navigators.	Fowler T et al.	—	2006	→
The feasibility of creating a population-based national twin registry in the United States.	Chulada PC et al.	—	2006	→
The Tuskegee Legacy Project: willingness of minorities to participate in biomedical research.	Katz RV et al.	—	2006	→
Why are ethnic minorities under-represented in US research studies?	Sheikh A	—	2006	→