The majority of the recommendations and pathways for exploring decision-making criteria for return of results have focused on populations of European descent. However, evidence suggests that opinions about receiving results and participating in research differ among racial and ethnic groups.94 Several factors such as level of control,95 type of disease, and validity of the findings96 could affect persons’ interest in participating in studies. Also, the management of individual research results and incidental findings could influence AAs’ decisions to participate in genomic research. Further, privacy, confidentiality, and informed consent procedures (traditional, binary, or tiered) could affect research enrollment and data sharing decisions.95
