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Chunk #19 — PART I. DEFINITIONS

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Managing incidental findings and research results in genomic research involving biobanks and archived data sets.
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biobank research system in which the primary research or collection sites are institutional sources for biobank data and samples, and the biobank in turn is a source for secondary researchers. We also avoid the term “donors,” to avoid implying that the individuals whose data and/or samples are collected have donated a gift and are owed nothing in return (as some would argue in the case of whole-organ donation, for example). While there is no perfect term, “contributor” suggests the vital contribution each individual makes to the assembly of a biobank and subsequent conduct of research.