The marriage of community-based participatory research and practice-based research networks: can it work? -A Research Involving Outpatient Settings Network (RIOS Net) study.
paper
Cited
Public
- Authors
- Williams, Robert L; Shelley, Brian M; Sussman, Andrew L; RIOS Net clinicians
- Year
- 2009
- Journal
- Journal of the American Board of Family Medicine : JABFM
- PMID
- 19587258
- DOI
- 10.3122/jabfm.2009.04.090060
- PMCID
- PMC2734054
BACKGROUND: Interest in community-based participatory research (CBPR) has surged during the last several years because of its potential to enhance the quality and usefulness of research outcomes. Practice-based research networks (PBRNs) potentially can provide a bridge between the research endeavor and communities; PBRNs have been identified as a promising venue for CBPR. However, this marriage of CBPR and PBRNs faces many challenges, such as locus of project idea generation, time constraints, and funding limitations. METHODS: This was a case study of the application of the CBPR model and CBPR principles specific to PBRN research using a recent PBRN study of communication about traditional, complementary, and alternative medicines. RESULTS: Challenges (eg, added cost, time) and benefits (eg, improved research data collection process, enhanced data analysis) resulted from application of the CBPR model and are detailed. CONCLUSIONS: For practical and ethical reasons, PBRNs need to adopt the CBPR approach for certain types, if not all, of their research. This might require operational adaptations by the PBRN (eg, a community advisory board, community membership in the network board of directors, and outreach to community groups for input into network priorities) as well as dedicated time and funding.
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| # | Section | Preview |
|---|---|---|
| 0 | INTRODUCTION | Interest in health research based in and benefitting communities has surged in the last several… |
| 1 | INTRODUCTION | These principles closely parallel those of community-based participatory research (CBPR), an… |
| 2 | INTRODUCTION | Practice-based research networks (PBRN), often composed of community primary care clinicians,… |
| 3 | INTRODUCTION | This limited application of CBPR approaches by PBRNs is not surprising.3, 13, 14 Experience with the… |
| 4 | METHODS AND RESULTS — Setting | RIOS Net (Research Involving Outpatient Settings) is a New Mexico PBRN supported by the University… |
| 5 | METHODS AND RESULTS — Common Elements of the CPBR approach — 1) Community participation in determining research agenda | Most experts on CBPR believe that the community should have a key or even lead role in determining… |
| 6 | METHODS AND RESULTS — Common Elements of the CPBR approach — 1) Community participation in determining research agenda — Example of application to a PBRN | At the time of RIOS Net’s formation, a Community Advisory Board (CAB) composed of community… |
| 7 | METHODS AND RESULTS — Common Elements of the CPBR approach — 1) Community participation in determining research agenda — Example of application to a PBRN | At its first annual member meeting, RIOS Net conducted a nominal group process to identify priority… |
| 8 | METHODS AND RESULTS — Common Elements of the CPBR approach — 2) Community participation in developing/refining research protocol | Community member participation in developing and finalizing the research design and methods helps to… |
| 9 | METHODS AND RESULTS — Common Elements of the CPBR approach — 2) Community participation in developing/refining research protocol — Example of application to a PBRN | In response to the TM/CAM priority topic, RIOS Net researchers proposed a project to explore and… |
| 10 | METHODS AND RESULTS — Common Elements of the CPBR approach — 3) Community participation in data collection and analysis | It is widely agreed that one of the key benefits of the CBPR method to researchers is the… |
| 11 | METHODS AND RESULTS — Common Elements of the CPBR approach — 3) Community participation in data collection and analysis — Example of application to a PBRN | As the next step in the TM/CAM study and using a qualitative research design, RIOS Net researchers… |
| 12 | METHODS AND RESULTS — Common Elements of the CPBR approach — 4) Reporting research results to the community | The CBPR research process is not completed until the results of the research have been shared with… |
| 13 | METHODS AND RESULTS — Common Elements of the CPBR approach — 4) Reporting research results to the community — Example of application to a PBRN | In addition to presenting final study results to the CAB and BOD, RIOS Net employs outreach/liaison… |
| 14 | METHODS AND RESULTS — Common Elements of the CPBR approach — 5) Community benefit from research | The partnership between researcher and community that is the essence of the CBPR approach implies… |
| 15 | METHODS AND RESULTS — Common Elements of the CPBR approach — 5) Community benefit from research — Example of application to a PBRN | RIOS Net assures that each community resident directly participating in a network project receives… |
| 16 | METHODS AND RESULTS — Common Elements of the CPBR approach — 6) Community participation in presenting research results to the scientific community | Some suggest that the partnership of CBPR should include the community’s participation in… |
| 17 | METHODS AND RESULTS — Common Elements of the CPBR approach — 6) Community participation in presenting research results to the scientific community — Example of application to a PBRN | A community member is coauthor on a publication resulting from the TM/CAM study in RIOS Net.16 A… |
| 18 | METHODS AND RESULTS — Costs | CBPR methods entail added costs to the research process. Those costs are both direct (e.g., staff… |
| 19 | METHODS AND RESULTS — Costs — Example of application to a PBRN | The costs to RIOS Net for the CBPR elements of the TM/CAM study included personnel, travel and… |
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| Rethinking the Way We Do Research: The Benefits of Community-Engaged, Citizen Science Approaches and Nontraditional Collaborators. | 2017 | 29028120 |
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| The science of primary health-care improvement: potential and use of community-based participatory research by practice-based research networks for translation of research into practice. | Tapp H et al. | — | 2010 | → |